Quick Links
Resources
About MyMyelomaTeam
Powered By
Palliative Care
I just read that my Insurance will only cover Palliative Care if I'm homebound. I did not know that. Do you have Palliative care but are able to get out?
I have seen the palliative care team in my area twice. Basically it you are using the palliative care aspects, not the hospice care, it is an extra support and can augment your regular treatment… read more
Have You Thought About How You Will Be Cared For When You Can’t Do It Yourself And The Cost?
I got quotes today at the start at $40/hr for Companion Care. This is the minimum price for over 8 hours a day. 4 hours a day is $60/hr. I don’t think Medicare pays for this?
@A MyMyelomaTeam Member It's family and he was a great father and man.
Has Anyone Experienced Anxiety From Revlimid? I Just Started 15mgs 4 Days Ago. I Seem More Edgy And Restless.
I'm going to try Zyrtec, next!!😶
Levothyroxine can cause anxiety....but that's not what you asked. I hate anxiety!!
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
I do not about cart but I do know it is hard to gett
Hi - I Am A 65 Year Old Pretty Long Term Survivor Of Multiple Myeloma. I Am Looking For Info Regarding Cost Of Revlimid
I am about to go on Medicare and was SHOCKED at the cost of the copay for Revlimid which I am starting as maintenance therapy. Even with the supplemental prescription coverage, it is obscenely expensive. Why is there no generic available? I am wondering how others deal with this? We don't qualify for the Leukemia/Lymphoma Society assistance program. Anything else out there? Thank you.
You will have to keep up with the grants
Have Any Others Been Diagnosed With MGUS And Not Ever Developed MM??
Yes, many people diagnosed with MGUS (Monoclonal Gammopathy of Undetermined Significance) do not develop multiple myeloma (MM). Here are some examples from the knowledge base:
- One member shared… read more
My Oncologist Is Suggesting I Seek Palliative Care. Have Any Of You Gone To Palliative Care? If So Did You Find It Helpful?
Good to know, Hospice & Palliative Care are two different types of services from Hospitals! 🤔❤️
VA may be a little diffrrent?
Anyone Else Having A Lot Of Itching Very Irritating
Itchy skin can be a common issue for those with multiple myeloma. Here are some potential causes and management tips:
Causes
- Radiation Therapy: Can cause dry, peeling skin that itches.
- Chemothe… read more
What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!
I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.
Pee bottle is great when you are sick, it is cold, you get up multiple times or if you just have limited movement.
Steroid For Bone Pain?
Told my hematologists about all the pain I’ve been having in random places and his suggestion was a steroid taper? Anyone else take a steroid for bone pain?
I’m on maintenance of 5Mg, my pain will come in my ankle, hip or back through the end of my cycle, I will take Dexamethazone 4mg for a couple of days that seems to work for me
Your Privacy Choices