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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Palliative Care

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

I just read that my Insurance will only cover Palliative Care if I'm homebound. I did not know that. Do you have Palliative care but are able to get out?

June 1
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A MyMyelomaTeam Member

You said you read it, but did you call and ask. I generally get better answers when I call Medicare or whoever your insurance carrier is.

June 1
A MyMyelomaTeam Member

I think hospice is well defined because it's at one end of the spectrum and so much of what's covered makes sense. When my dad was in hospice he bounced between skilled nursing (the closest thing to ICU) to hospice care at home and Medicare paid for every thing except the mandatory 24X7 care provider. I learned more about my father and changed more of his diapers with lover than I imagined.
I am with a great palliative care provider here in Col Sp. To me they are #1 a supliment to pain management. They work with me on my ever changing pain issues. #2, They ask about and deliver quality of life issues and provide solutions. Psychic, emotional, spiritual, physical, limitations. They are a great consier into the "healing" world/business/solutions. And if I can get insurance to pay for it, I'll go to a WWII morphine drip dispenser aperatic in Sunny South Beach Miami.
You definitely need to get a good definition of "HomeBound". Bring some examples of what you think each is. I also palliative has much looser rules and you can talk them into stuff.

June 1
A MyMyelomaTeam Member

Palliative care for myeloma focuses on improving quality of life at any stage of the disease. Here are some key points:

- Team Approach: Palliative care involves a team of healthcare professionals, including social workers, nurses, dietitians, physical therapists, psychiatrists, and massage therapists
- Symptom Show Full Answer

Palliative care for myeloma focuses on improving quality of life at any stage of the disease. Here are some key points:

- Team Approach: Palliative care involves a team of healthcare professionals, including social workers, nurses, dietitians, physical therapists, psychiatrists, and massage therapists.
- Symptom Management: It helps manage pain, improve sleep, and maintain a healthy weight.
- Administrative Support: The team assists with filling out medical forms, dealing with insurance, and finding housing and transportation.
- Emotional Support: Provides mental and emotional support for both patients and their loved ones.
- Insurance Coverage: Some palliative care services are covered by health insurance, and veterans may have access to free or low-cost care through the U.S. Department of Veterans Affairs.
- Not Hospice Care: Palliative care can be provided alongside myeloma treatments and is not limited to end-of-life care.
- Extended Life Span: Some studies suggest that palliative care can extend the life span of people with serious illnesses.

For more detailed information, you can refer to the full article on MyMyelomaTeam.

June 1
A MyMyelomaTeam Member

I’m using palliative care and I’m definitely not homebound. So far they’ve augmented my regular treatment with alternative medication when I had an issue. Of course I checked their suggestions with my doctor. I’ve had 2 appointments and will go again later this week. But as you said it may depend on your insurance coverage.

June 1
A MyMyelomaTeam Member

I experienced bilateral neuropathy in my feet to the point I was in tears sometimes. My oncology team referred me to palliative care. I never had an issue with my insurance covering my palliative care. I would definitely recommend that you contact your insurance company directly for clarification. If the insurance is denying palliative care then I suggest that your oncology team do a peer to peer whereas the oncologist explains to the insurance physicians why you need this care. I hope this helps.

June 2

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