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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
3439 questions
Have Not Looked It Up Yet, Bt Has Anyone Had/heard Of ELRA( Renap?). It Is A Byte. Md Proposng Dependng On Bone Biopsy Result.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It sounds like you're referring to Elrexfio (Elranatamab-Bcmm), which is indeed a type of treatment for multiple myeloma. Elrexfio is a B-cell maturation antigen (BCMA)-CD3-directed bispecific… read more

posted 2 hours ago
MGUS And Progression To Myeloma
A MyMyelomaTeam Member asked a question 💭

How long does it take for MGUS to progress to Multiple Myeloma

A MyMyelomaTeam Member

Thank you for the tips Pbldini ,& the book tip. Will look it up

posted 2 hours ago
What Do Folks Think About Having A Patient Advocate For Visits, Procedures? Especially When One Is First Diagnosed.
A MyMyelomaTeam Member asked a question 💭

After my Oncologist visit and all the changes we made about issues I have pointed out for years, I got to thinking having a patient advocate, one who has MM for visits would be a good thing. Docs, NP's, assistants tend to be focused on the medical side. Explaining other issues: side effects, experience with procedures, alternatives, etc is not their bailiwick.

A MyMyelomaTeam Member

I amend my first post. My husband was with me for the hour long BMB. It was worse than having a baby.

posted 6 hours ago
Thoughts On Energy Drinks
A MyMyelomaTeam Member asked a question 💭

Does anyone drink energy drinks to fight afternoon fatigue? Is so, what kind?

A MyMyelomaTeam Member

I drink hot chocolate/ mushrooms. They give me the energy and my immune system!

posted 3 hours ago
Going Through The Hardships
A MyMyelomaTeam Member asked a question 💭

I am going for the C T Scan , PET Scan,Eye Cataract Extraction lens implantation,this May and this I got to get through the problem but l pray to God please help me to overcome the problem.🙏

A MyMyelomaTeam Member

Remember, you eat the elephant one bite at a time! Not all at once. Praying for you, that our God will take you through each day and each moment of each day. Keep us posted, and don't forget to… read more

posted 2 hours ago
I Joined But No One Has CNL Chronic Neutrophilic Leukaemia So I Wish To Unsubscribe But Keep Getting These Mails
A MyMyelomaTeam Member asked a question 💭
Has Any Of My Fellow Fred Hutchison Cancer Center Friends Ever Attended The Event In June From Cancer To Wellness?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Too bad it’s not on Zoom

posted 20 hours ago
What Is T-cell Therapy All About? I've Stopped Treatment But Still Looking For Something That I Might Try. I'm Already 86.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Nancy
Why not try something natural? I just started reading Dr Brandy's book, "Beat Back Cancer naturally". It's an easy read and gives you a list of supplements that may help and a diet that may… read more

posted 1 day ago
Hello! I Have Been Referred To Hematologist/oncologist For An M Spike. What Should I Expect With The First Appointment?
A MyMyelomaTeam Member asked a question 💭

My test results from my lab states that I have monoclonal spike in the beta region IFE get pattern shows an IgG type lambda monoclonal protein. Can anyone tell me what the normal protocol is from there? Thanks!

A MyMyelomaTeam Member

This site also has a list of 40 Questions to ask your doctor.

posted 8 hours ago
Any Of Team Member May Experience A Metallic Taste During The Chemo Or After The SCT Especially When Eating,drinking And Feeling Dry Mouth.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Betsy,
After using Biotene often, my mom’s mouth got dryer. We did not know that was a side effect. Coconut oil was what the Nurse recommended and it worked? No more dry mouth.
Paula🌹

posted 24 hours ago
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