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When Is The Optimum Time To Get A Stem Cell Transplant?
I am treated by two separate oncologists for multiple myeloma: my regular oncologist's position is I should do the stem cell transplant while I am doing well in my treatment (meaning ASAP!). My Uni. of Penn Hospital oncologist who is responsible for my stem cell collection (which was completed in July 2024) takes the position that as long as I am doing well in my treatment, there is no rush to do the stem cell transplant.
I had my ASCT at Dana Farber and they required I have the ASCT after 3 lines of novel therapies. More than 3 different treatments, the ASCT is less likely to be effective. I was hoping I could go… read more
Can Anyone Tell Me If They Have Problems With Their Feet?
Donna, thanks. I spoke with my oncologist and she prescribed 600mg and it worked well.
What Can Be Done About Your Feet?
If you're experiencing neuropathy in your feet due to myeloma, here are some suggestions for relief and safety:
- Foot Massager: Using a foot massager for 15 minutes every few days can help alleviate… read more
Has Anyone Noticed Their Hand Strength Weaker Then Before Starting MM Treatments?
I’m having some issues opening jars and water bottles sometimes, the good thing I can still grip a glass to drink but I’m wondering if there’s exercises to strengthen or is it something else?
I am only smoldering and receiving no treatment and my hands have gotten worse over the last year. At first it was just my thumb joints. Now on any day it can be any hand joint. I definitely have… read more
Why Is My Pulse Rate High For A Few Days After My Kyprolis And Dexamethasone Or On Days I Add Sarclisa My Resting Heart Rate Goes From 60-89
I Have Igg Lambda. On Monthly Darzalex, Dex, And 21 Day Revlimid 15mg. Is .6 M Protein And 41 Lamda, Ratio Of 0.09 A Reason To Change Meds?
No Sct, no lesions or other manifestations of myeloma. Feel great. Hike, bike, surf, ski, etc..Had induction quad therapy 18 months ago. VGPR. 75 yrs old, 5’7”, 150 lbs. Bone marrow biopsy a year ago showed 10,000 ppm M protein. Are numbers alone sufficient to change treatment or look at consider how I feel too (overall health)?
Great to hear Kenneth. I am 68 and chose not to do SCT either. 8 months later I still have no symptoms, no side effects from medication. I am exercising at least 3 times a week and eat fairly healthy… read more
Describe Mmg Myaloma
It seems like there might be a typo in your question. If you meant "MGUS" (Monoclonal Gammopathy of Undetermined Significance) and "myeloma," here's some information:
MGUS (Monoclonal Gammopathy of… read more
Hi, I Am Luc From Ambler PA. I've Been On Velcade Since 2016. Has Anyone Been On Velcade? How Do You Deal With Side Effects? Thanks
You are lucky if neuropathy hasn’t attacked you being on Velcade.
Has Anyone Been Diagnosed With Lesions In Shin Bones?
I had a knee replacement in my right knee due to bone on bone osteoarthritis 3 years ago. Now with MM I had to have that replacement removed, rods placed above and below knee after the cancer lesions… read more
Are Men Going Through MM Treatments Having Prostate Issues?
Hi Karen,
Though in my case there. Is lot any prostrate issue but my doctor told me for regular checkup and given medicine to eat. What’s ur issue now? Rgds
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