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Looking Into Palliative Care For My Dad. Any Help Or Advice For This Or Anything Else That Would Be Beneficial?

A MyMyelomaTeam Member asked a question 💭
Edwardsville, IL

My dad is 79, diagnosed in Sept. of 2022. The array of medical issues and medication side effects have really thrown some curve balls. Multiple trips to the ER and hospital stays to resolve issues and complications
Currently my dad's mental state is not good at all and is declining. I don't know what to do, where to turn, or what help is available. He was in remission at the end of last summer (took revlemid and received derratumamab) but hasn't been on treatments for 6 months so I am afraid… read more

January 20
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A MyMyelomaTeam Member

Thank you so much for your advice and willingness to be available for more help! I really appreciate that. Dad has an appointment with his Oncologist on Monday so I will discuss these options with him then and see what is available in our area.

I'm sure it's easy to feel hopeless in this situation, please know you have so much to offer. The knowledge you've gained through this process alone so you can turn and help others is amazing. I'm sure your family doesn't see you as a burden and are so happy that you are there. Keep fighting. Best of luck to you as well and thank you again for your help!

January 20
A MyMyelomaTeam Member

Definitely ask the Oncology or hospital he gets treated at about the Palliative Care.

Ask about a patient advocate.

I also found assistance with our local soecial education /special needs center for getting that started.

I do hope things improve in that area for him. The pain alone is debilitating and then humility cause you hurt too much to be anything except a burden.

That's how I feel with my wife and kids. Not working, just occupying space. :/

Good luck in your search, please message me anytime.

Sincerely,

Gerald R

LL&P

January 20
A MyMyelomaTeam Member

Palliative care can be incredibly beneficial for someone living with myeloma. Here are some key points from the knowledge base:

- Palliative Care Team: A palliative care team consists of healthcare professionals who work together to help manage symptoms, provide emotional support, and assist with administrative issues like Show Full Answer

Palliative care can be incredibly beneficial for someone living with myeloma. Here are some key points from the knowledge base:

- Palliative Care Team: A palliative care team consists of healthcare professionals who work together to help manage symptoms, provide emotional support, and assist with administrative issues like filling out medical forms and dealing with insurance.

- Benefits at Any Stage: Palliative care can help at any stage of myeloma. Early on, it can help come to terms with the diagnosis and prevent complications. In later stages, it can help manage symptoms and transition to hospice if needed.

- Support for Loved Ones: Palliative care also benefits loved ones by providing practical advice and emotional support, helping them manage care while taking care of themselves.

- Insurance Coverage: Some palliative care services are covered by health insurance. It's important to talk to your oncologist and health insurance carrier to learn more about your options.

- Extended Life Span: In some studies, palliative care has been shown to extend the life span of those living with serious illnesses.

- Online Support: Joining a community like MyMyelomaTeam can provide additional support and advice from others who are going through similar experiences.

For more detailed information, you can refer to the article "Palliative Care for Myeloma: 8 Fast Facts" on MyMyelomaTeam.

July 18
A MyMyelomaTeam Member

We have had a lady that does Pallitive care come out twice. She is very kind and helpful. My only concern is that as she adds more to her caseload, she will only see him once a month. Not a big deal when he is doing well but if he takes a turn for the worse, I'm not sure she will be as helpful as I would've hoped. We will see. It can't hurt to have someone else come and check in on him.

February 21
A MyMyelomaTeam Member

Thank You Very Much for the Birthday wishes. I really appreciate that allot.

I am happy to help all I can, I was wondering if you had any success with getting assistance?

If you would like to talk more please let me know.

Your right, at least I can provide some sort of guidance from my experiences. Thank you for that booster.

I look forward to helping more if needed.

Sincerely Yours,

-Gerald

February 1

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