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Does Anyone Else Have Hand And Head Tremors? Mine Is Terrible And I Have Had Every Test But They Can’t Get It Corrected. It’s Been A Year
Yup, it affects my vocal cords. I’ve had it for at least 10 years, much longer than I’ve known I’ve had MM. I got my diagnosis about 9 months ago.
Has Anyone Noticed An Increase In Calcification Of The Arteries (CAD) Related To Myeloma? I Had A Score Of 192 Six Years Ago And Now 1130
Yes I’m taking D3 /K2. I was told by my oncologist that the Dex may have caused the calcification spike. Thanks 😊
What Is The Age Cut Off For Doing An SCT?
I don't think there is an age cut off. It really depends on your overall health and your living situation. I think they look at the whole individual.
What Is Generally The Age Cut 0ff For Doing An SCT?
Not everyone with myeloma is eligible to undergo a stem cell transplant (SCT). This treatment can cause many side effects, so it may not be a good fit for someone who is older or who has other serious… read more
When Is The Optimum Time To Get A Stem Cell Transplant?
I am treated by two separate oncologists for multiple myeloma: my regular oncologist's position is I should do the stem cell transplant while I am doing well in my treatment (meaning ASAP!). My Uni. of Penn Hospital oncologist who is responsible for my stem cell collection (which was completed in July 2024) takes the position that as long as I am doing well in my treatment, there is no rush to do the stem cell transplant.
I had my ASCT at Dana Farber and they required I have the ASCT after 3 lines of novel therapies. More than 3 different treatments, the ASCT is less likely to be effective. I was hoping I could go… read more
Can Anyone Tell Me If They Have Problems With Their Feet?
Donna, thanks. I spoke with my oncologist and she prescribed 600mg and it worked well.
What Can Be Done About Your Feet?
If you're experiencing neuropathy in your feet due to myeloma, here are some suggestions for relief and safety:
- Foot Massager: Using a foot massager for 15 minutes every few days can help alleviate… read more
Has Anyone Noticed Their Hand Strength Weaker Then Before Starting MM Treatments?
I’m having some issues opening jars and water bottles sometimes, the good thing I can still grip a glass to drink but I’m wondering if there’s exercises to strengthen or is it something else?
I am only smoldering and receiving no treatment and my hands have gotten worse over the last year. At first it was just my thumb joints. Now on any day it can be any hand joint. I definitely have… read more
Why Is My Pulse Rate High For A Few Days After My Kyprolis And Dexamethasone Or On Days I Add Sarclisa My Resting Heart Rate Goes From 60-89
I Have Igg Lambda. On Monthly Darzalex, Dex, And 21 Day Revlimid 15mg. Is .6 M Protein And 41 Lamda, Ratio Of 0.09 A Reason To Change Meds?
No Sct, no lesions or other manifestations of myeloma. Feel great. Hike, bike, surf, ski, etc..Had induction quad therapy 18 months ago. VGPR. 75 yrs old, 5’7”, 150 lbs. Bone marrow biopsy a year ago showed 10,000 ppm M protein. Are numbers alone sufficient to change treatment or look at consider how I feel too (overall health)?
Great to hear Kenneth. I am 68 and chose not to do SCT either. 8 months later I still have no symptoms, no side effects from medication. I am exercising at least 3 times a week and eat fairly healthy… read more
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