Quick Links
Resources
About MyMyelomaTeam
Powered By
I Have Witnessed Some Married Couples Separate And Divorce When One Of The Partner Gets Cancer. What Causes This Unfortunate Situation?
I haven’t had any side effects except fatigue. 2-3 days after taking Valcade injections Been taking for last 8 years
What’s The Word On Alcohol? I’ve Had 2 Beers In 2 Years And I’m In Tears!
I remember my doctor saying no alcohol during induction chemo but haven’t asked him during maintenance. What can you tell me about it? What has your doctor advised? I’m currently on the maintenance regimen of 10mg Revlimid 21/7, dexamethasone and Darzalex monthly.
Pee bottle is great when you are sick, it is cold, you get up multiple times or if you just have limited movement.
How Many Of You Know That Viagra & Other Male Enhancement Are Known To Be The Cause Of Multiple Mylomia?
Does anyone know if there is a Class Action lawsuit in the works related to Multiple Mylomia, and OTC Male Enhancement supplements which many have been proven to contain generic Viagra?
https://www.drugs.com/sildenafil.html#warnings
Angie, thank you for this very helpful information. I know estrogen replacement can feed some types of breast cancer. But I have not heard about the link to Myeloma. My MIL would not stop using… read more
Anyone Else Out There Lonely? At Lot Of Times, It Feels Like It's Just Me And My Caregiver. I'm Looking For Friends. Anyone Game? 🩷
Donna, I guess they first thing to find out is if your MM is aggressive & what stage. I have stage 3 Lambda light chain with 17p deletion, probably the worst combination possible, so I don't think I… read more
As The Spouse Of A MM Person, Is It Safe For Me To Go To Places Where There A Lot Of People? My 50th Reunion Is Coming Up In September.
You go. And just take good care of yourself, everything will be fine. Especially since you are more aware than the person I live with. My husband attends many events and travels, comes home and isn’t… read more
I Need Feedback. I Have A Relative Who Says I’m Using My Smoldering MM As An Excuse To Not Do Things Or Garner Sympathy.
This relative says SMM is a benign condition that does not cause symptoms. On top of SMM, I have a heart condition, osteoarthritis, osteoporosis, Cushing’s from a high corticosteroid, so I am losing my eyebrows and some of my hair. Kidney stone too. I used to be so active, that it bothers me to rest too much. I wish I had the energy.
@A MyMyelomaTeam Member,
I found your Melatonin at Costco the other day.💕
What Is Your Take On The Covid Vaccines And A Spike In Your Protein Level?
Shipmates
I was in perfect health, well maybe a few pounds overweight. I never took any pills except for my migraines. No high blood pressure no high cholesterol, no history of cancer in my family. I’m the first. I had my blood tests done at my physical in November 2020. Everything was fine, no problem. March and April 2021, I received my Covid vaccines and in November, 2021, I was told I had way to much protein in my blood. I needed to go to an oncologist and was diagnosed with… read more
My first COVID vaccine caused a spike in my light chains, but it was temporary. I don't remember if my protein pattern was effected..
I Found Out Today, I Will Be Going In For ASCT Likely Next Week. Any Help As To What To Bring To The Hospital Or Any Helpful Advice In Gener
Thank you, Miriam...
Hello MM Family What Is The Difference Between Remission And Cancer Free? Are They Consider The Same. Please Give Feedback.
I do not about cart but I do know it is hard to gett
Has Anyone Had The Shocking Experience Of Having Someone Blame You For Getting MM?? I Was Told, "Well You Know You Brought On Your MM." WTH!
There are a lot of people who are really hurtful and sometimes I think they are scared and if they say you don’t have it that will make it true
So sorry for all the hurtful comments you and the mm… read more
Your Privacy Choices