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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?

A MyMyelomaTeam Member asked a question 💭
Las Cruces, NM
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A MyMyelomaTeam Member

If you have become refractory to Revlimid, then the other IMIDS will probably not work. Depending upon your cytogenetics, you could use Venetoclax (t11,14) or go with a CAR-T. Make sure you are… read more

I'm +16 Days After My Transplant. Anyone Else Get Tired Easily And Want To Sleep?

A MyMyelomaTeam Member asked a question 💭
Bitely, MI
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A MyMyelomaTeam Member

Omg yes indeed it’s more like when was I awake lol!!!!

I Am On The Treatment Of Chemo Shots For 16 Weeks With Medication. Anyone Have Experience With This?

A MyMyelomaTeam Member asked a question 💭
Gladstone, MO
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A MyMyelomaTeam Member

How many milligrams

Hi All, My Stepfather Passed 16 Sessions Of Chemo, He Is Taking Lenalidomide 15 Days In A Row A Month, Will That Do???

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Hi Tarane Pareto
I was on lenalidamide for my treatment. I’m am now in partial remission, I was 21days a month On & 7 days rest. Then I started again, this lasted for for eight months. Partial… read more

How Long After Your Stem Cell Transplant Did It Take To Feel Better, To Be Able To Taste Food Again ?

A MyMyelomaTeam Member asked a question 💭
Hummelstown, PA

My SCT was 16 days ago. I am utterly exhausted and everything tastes bad. Looking for some hope to feel better.

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A MyMyelomaTeam Member

I ate a lot of mashed potatoes! Loaded with butter, sour cream, and milk. I had my transplant in May 2024. Sweets still taste really gross..which might be a good thing!

How Do You Get Vaccines After A SCT. No One Seems To Know. My Primary Dr. Said No. Florida Cancer Specialist Doesn't Know.

A MyMyelomaTeam Member asked a question 💭
Homosassa, FL
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A MyMyelomaTeam Member

When I had problem my stem cell doc set it up

It’s Been 57 Days Since My SCT. My Platete Counts Dropped From 200 To 16 And I Received A Platelet Transfusion Yesterday? Anybody Know Cause

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ
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A MyMyelomaTeam Member

I do the same.

I Was Just Informed That I Have A T14-16 Mutation And That Puts Me At High Risk. This Sounds Very Scary - Does Anyone Know More About It?

A MyMyelomaTeam Member asked a question 💭
Cincinnati, OH
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A MyMyelomaTeam Member

Thank you, I am scheduled to see a specialist on July 15th.

I Was On Carfilzomib + Dexa Chemo. It Responded For 16 Months. Now Not Responding. Is There Any Chance That This Chemo Medicine Work Again.

A MyMyelomaTeam Member asked a question 💭
Kerala, India
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A MyMyelomaTeam Member

They will probably want to switch you to another of the novel agents💕🥰

Is There A Water Bottle That Is Suggested.

A MyMyelomaTeam Member asked a question 💭
coeurdalene,id
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A MyMyelomaTeam Member

I have just bought a 1 litre water bottle ocean bottle wasn't cheap as they contribute to cleaning the sea but keeps drinks cool for 16 hours and hot for 6 has a lid as I do not like straws as I think… read more