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Is Anyone On Tecvali?? I Just Started It. It Took My Light Chains Number Right Down After One Month. Do You Have Side Effects
I’m from Westchester, NY
Hope To Get Answers From People Who Are On Tecvali For Their M M. It Is New And I Started It In June My Numbers Are All Down To Zero.
With a Doc or Onc printed Work Order:
Natural Killer Cells - Quest Code 37088 - CPT Code 86357
Omega 3 / 6 Ratio - Quest Code 91001 - CPT Code 82542
Is Anyone Getting Tecvayli Treatments. I Just Started Them Please Let Me Know What You Experienced
My numbers are down to zero now. Started in June. Side effects
I have joints are bad. Hope to go to every 2 weeks soon. Great drug so far
Has Anyone Opted To Come Off The Wait List For CAR-T Treatment And Begin The Tecvayli Injections Instead?
Two years after my stem cell transplant, my Multiple Myeloma relapsed. In January 2023, I was put on a "wait list" to receive CAR-T treatment. After 6 months on the waiting list, my myeloma symptoms were getting pretty severe. My M-Spike numbers were increasing rapidly. It would be another 6 to 8 weeks before my T cells would be collected and another 6 to 8 weeks before the cells would be returned and given to me. My primary oncologist and I opted out of the CAR-T program and began the Tecv… read more
We do not know the cost of Tecvayli. It will likely vary with different insurance coverages.
Teclistamab
NEW Drag - TECVALYI Teclisamab
Hello all - now 4 year in to the journey of MM, I did it all . Bone Meroe , Car-t cell , and every drag possible. I just can’t tolerate those horrible drags more than few weeks , but somehow they kept me alive for almost 4 years - some worked some not - those side effects on steroids is hard !! in November 2022 the FDA approved a drag called teclisamab - it’s not chemical based - so is not chemo , it’s very complicated drag to start or to explain here , but I did go for it and I believe it… read more
Anybody On Tecvayli And How Are They Responding, Any Side Effects?
Anyone Using Teclistamab? How Are You? I Just Finished Ramping Up And I Am Toast.
Looking To Connect With Other Teclistamab Patients
To connect with other patients who are using Teclistamab (Tecvayli) for myeloma, you can sign up at MyMyelomaTeam. This platform is specifically designed for individuals living with myeloma, allowing… read more
I Am Getting The IVIG Each Month, So Are You Finding It Helps Prevent Relapse?
Multiple Myeloma - IVIG's have helped me immensely!
I don’t believe that it helps you from relapse but that should be a question for your doctor
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