Hi Jan, I’ve been on Tekvayli since last August. I did not have any side effects at all. My multiple melanoma cancer cells are “undetectable” as of last week. I started with an injection every week, then they extended out to every 2 weeks, and now it’s every 3 weeks. I find it to be a game changer for me. I hope you have the same success as I’ve had.

My numbers are down to zero now. Started in June. Side effects
I have joints are bad. Hope to go to every 2 weeks soon. Great drug so far

Thanks. I lost my taste too. But that is coming back
I have had 2 treatments since the 1st 3. I did get swelling at the injection site. Hope it works
Anyone else get this drug

Hi Jan, I received this as a bridging before my car t therapy at Moffitt. I had the start up doses and then 2 full doses. I lost my sense of taste, my nails on my feet and hands got white marks on them and weakened them. My palms and feet soles skin peeled. It was nasty stuff but it did bring the myeloma numbers down. After 3 months I am starting to get my taste buds back slowly. Nails are slowly improving and skin stopped peeling. I hope taste returns completely because not tasting food was a horrible side effect. I was told by nurses and the Dr that anyone taking this has these side effects. ☹️. I hope you will be a lucky one and not experience these. Sending prayers your way!