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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Opted To Come Off The Wait List For CAR-T Treatment And Begin The Tecvayli Injections Instead?

A MyMyelomaTeam Member asked a question đź’­
Richland, WA

Two years after my stem cell transplant, my Multiple Myeloma relapsed. In January 2023, I was put on a "wait list" to receive CAR-T treatment. After 6 months on the waiting list, my myeloma symptoms were getting pretty severe. My M-Spike numbers were increasing rapidly. It would be another 6 to 8 weeks before my T cells would be collected and another 6 to 8 weeks before the cells would be returned and given to me. My primary oncologist and I opted out of the CAR-T program and began the Tecv… read more

August 9, 2023
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A MyMyelomaTeam Member

Began Tecvalyli the first week of May 2023. The first doses are given at the hospital. My M-Spike number went down a point after the first full dose and has continued to come down. I have an injection at my local cancer clinic once a week. Side effects last about 30 hours. We are located in southeastern Washington - the clinic is in Kennewick Washington.

August 12, 2023
A MyMyelomaTeam Member

We do not know the cost of Tecvayli. It will likely vary with different insurance coverages.

August 14, 2023
A MyMyelomaTeam Member

What is the cost of this injection in USD

August 12, 2023
A MyMyelomaTeam Member

Hoping for good results for you! How long have you been on Tecvayli? My husband’s numbers are coming up after the second remission…wondering about this drug in the future? Where (Dr office or hospital) and how often do you take injections??? Any severe reactions? Dr is talking about Ninlaro next for my husband!

August 12, 2023

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