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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Sarclisa" in Q&A. To see all results and access other features, sign up for free.

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What Is A "good" Or Manageable M Spike?

A MyMyelomaTeam Member asked a question 💭
Yardley, PA

Is there such a thing as a good or manageable M Spike? Or is it different for each type of Myeloma? My M Spike was down as low as .15 back a few years ago. It now has been hovering around .40 since I changed therapies. I started with Revlimid, Velcade, Dex on 2018. Now on Darzalex Fastpro, Kyprolis, Dex. I know I want it lower but my doctor says it may never go lower. Maybe just hanging out at .4 is ok.

What is other's experience?

Steve

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A MyMyelomaTeam Member

Ok, after Pomalyst, Sarclesa and some radiation, my M Spike has moved from 1.67 down to about .30. this treatment has worked apparently, but I am fatigued. Trying to stay positive in spite of the… read more

This Looks Like Good News

A MyMyelomaTeam Member asked a question 💭
San Jose, CA

https://myelomaresearchnews.com/news/fda-approv...

FDA approves Sarclisa regimen as first-line treatment for myeloma
FDA approves Sarclisa regimen as first-line treatment for myeloma
https://myelomaresearchnews.com/news/fda-approves-sarclisa-regimen-first-line-treatment-myeloma/
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A MyMyelomaTeam Member

Hi Ripnlips, just another tool in our toolbox in this fight for our lives.

My Husband Has Started A New Treatment Of Sarclisa, Pom, And Dex. He Is Having Difficulty Tolerating This Trio. He Was Diagnosed In 2009.

A MyMyelomaTeam Member asked a question 💭
Toronto, ON

I would like to hear from others who are on this treatment. Just finishing first cycle. Thank you

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A MyMyelomaTeam Member

I begin this treatment plan April. I needed a port and a blood clot was discovered. I am taking eliquis twice a day. I have leg spasms and when that happens, I take a tablespoon of mustard and drink… read more

This Looks Very Promising

A MyMyelomaTeam Member asked a question 💭
San Jose, CA

https://myelomaresearchnews.com/news/adding-sar...

Adding Sarclisa to induction therapy delays myeloma progression
Adding Sarclisa to induction therapy delays myeloma progression
https://myelomaresearchnews.com/news/adding-sarclisa-induction-therapy-delays-myeloma-progression/
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A MyMyelomaTeam Member

Yes, it does but it is still early yet and the studies conducted so far appear to focus on those with an unspecified early detection. I am sure they will expand the testing into those of us whose MM… read more

I Have Kappa Light Chain - High Risk MM. Has Anyone Experienced Low ANC And White Counts Frequently? I Am On Pomalyst And Sarclisa And DEX

A MyMyelomaTeam Member asked a question 💭
Sacramento, CA

I feel fine, but I know my ANC is dangerously low. My doctor will probably have me start injections of neupogen.
Thanks,
Kara

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A MyMyelomaTeam Member

I have a gain of 1q. which puts me at high risk.

Why Is My Pulse Rate High For A Few Days After My Kyprolis And Dexamethasone Or On Days I Add Sarclisa My Resting Heart Rate Goes From 60-89

A MyMyelomaTeam Member asked a question 💭
Huntsville Ontario Canada
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A MyMyelomaTeam Member

My pulse and blood pressure went up on Kyprolis. I got a blood pressure cuff. I took my pulse and blood pressure every day at home and recorded it for my doctor . We don't want more issues than we… read more

Anyone On Elotuzumab And Pomalyst Combination? I Was Just Taken Off Daratumamab And Revlimid. Which Is Newer?

A MyMyelomaTeam Member asked a question 💭
Hurricane, UT
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A MyMyelomaTeam Member

I think elotuzamam is also known as Sarclisa. I was on Pomalyst, dex and Sarclisa with very good results until they all quit working. Now I am on day 25 of CAR-T.

Has Any One Had A Regimen Of VRD Combined With Isatuximab? Were The Results Positive?

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Our local support group had a member who was newly diagnosed who went on a trial with those drugs.

How Many High Risk Kappa Light Chain People Have Had Car-T? If So, Did You Go Into Complete Remission?

A MyMyelomaTeam Member asked a question 💭
Sacramento, CA
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A MyMyelomaTeam Member

I'm so sorry your husband is going through all these complications. I appreciate all the information. I am hoping I am able to put off Car T until they perfect it a little better. I have a PET scan… read more

I Have Survived For Eight Years Since Diagnosis. My Last Treatment (Sarclisa) Brings About Partial Effects-but NOT Remission. Suggestions???

A MyMyelomaTeam Member asked a question 💭
Sonoma, CA

I am in moderately good condition-Doing some form of cardio five days weekly without fail

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9 Treatment Options for Myeloma Relapse Read Article...