I Have Survived For Eight Years Since Diagnosis. My Last Treatment (Sarclisa) Brings About Partial Effects-but NOT Remission. Suggestions???
I am in moderately good condition-Doing some form of cardio five days weekly without fail
8 years of navigating myeloma is truly a testament to your resilience and strength! It’s great that Sarclisa has had some effect, even if remission remains elusive. While I can’t provide medical advice, here are some ideas you might discuss with your care team:
- Adding or adjusting treatments, like combining Sarclisa with other drugs (e.g., pomalidomide or carfilzomib), might enhance its effectiveness.
- Explore whether there are ongoing trials for newer therapies like bispecific antibodies or CAR-T cell treatments that could be a fit for you.
- Managing side effects and maintaining your strength can sometimes help make additional therapies more tolerable and effective.
Are your doctors exploring any next steps or options with you? It sounds like you’ve already shown incredible perseverance, and there’s a lot of innovation happening in myeloma care. Sending you hope and encouragement! 💛
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