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This Question Gets Asked A Lot. "Should I Get A Stem Cell Transplant?"
I would recommend this article from Dana-Farber:
https://www.dana-farber.org/newsroom/news-relea...
I would also Google
DETERMINATION and doctor Paul G Richardson who ran the study. I think Dr. Richardson has been researching and treating MM for over 30 years.
You need to interpret for yourself the conclusions of this study as it relates to overall survival.
To quote the conclusion:
Note: PFS is progression free survival
Patients who did not undergo an early transplant had a median PFS of… read more
ripnlips, I think if your health is good and you are not experiencing any symptoms or side effects from current treatments, there is probably no reason to get a SCT. But most people will listen to… read more
I Need Feedback. I Have A Relative Who Says I’m Using My Smoldering MM As An Excuse To Not Do Things Or Garner Sympathy.
This relative says SMM is a benign condition that does not cause symptoms. On top of SMM, I have a heart condition, osteoarthritis, osteoporosis, Cushing’s from a high corticosteroid, so I am losing my eyebrows and some of my hair. Kidney stone too. I used to be so active, that it bothers me to rest too much. I wish I had the energy.
@A MyMyelomaTeam Member,
I found your Melatonin at Costco the other day.💕
How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?
Hey Brenda. I am very stable!!! I'm doing great. I'm just one of those weird birds that might not ever reach mrd negativity. Even with transplant and 8 years of treatments. My numbers have been going… read more
Have Some Of You,as I Have, Have Experienced An Oncologist Ordering You Not To Take Supplements As They Might Interfere With Your Treatment?
I have, frankly, not listened to this advice and have researched the best supplements to take. I believe this has contributed to my doing as well as
I have been doing. Larry2 suggested that I read Dr. Brandy's book "Beat
Back Cancer Naturally." I recommend reading this rich book. Dr. Brandy presents research data supporting the use of supplements in that they enhance the conventional treatment with chemo and often reduce the side effects of the chemo treatment. I am in my third year of… read more
Thanks Dorothy74. I hope that you are doing well.
What Determines Whether A Person Has A Stem Cell Transplant? From All The Info On This Site, Is Age Or How Sick You Are Determine This?
You are right!. SCT is a big thing. . Protocol treatment of choice . "They say, studies show". SCT is not a wonder treatment. It is a grueling intense lengthy procedure, only to be followed by new… read more
I Was Diagnosed A Year Ago With MM. I Consider Montgomery, AL A Major City To Be Treated In But Wonder If I'm Getting The Best Care
I have responded very well to treatment and after 8 months I'm stable however in reading all of the comments and resource information it's confusing in comparing ones health issue to mine because you do not have all of the persons information. I am extremely concerned the doctors here are so over worked that you are seem mostly by a Nurse Practioner rotated between 6 other ones for just one oncologist. Your visits are rushed and rarely is there time to discuss your concerns. They only want to… read more
Karen,
My Orthopaedic Oncologist referred me to Physical Therapy for my hip and back pain.
thMMRF.org has a list of Mm Specialists.
Is There A Difference Between An Oncologist And A Referring Oncologist?
I noticed something I didn't see? before.
Basically, I had the impression that my oncologist IS mostly to refer patients, according to test results; lab work, scans, bmb, etc Am I wrong?
Robin, Dr. Peter Voorhees or Dr. Barry Paul at Levine Cancer would be a choice. Both are my doctors and are quite knowledgeable and well known. Also of note we have started a local… read more
Palliative Care
I just read that my Insurance will only cover Palliative Care if I'm homebound. I did not know that. Do you have Palliative care but are able to get out?
I have seen the palliative care team in my area twice. Basically it you are using the palliative care aspects, not the hospice care, it is an extra support and can augment your regular treatment… read more
My Kappa Numbers Are Increasing, My MM Specialist Said We Are Going To Watch This. Is There Anyone Else Who Is Going Through This And What ?
Similarly, it was not as bad for me. . The sample was collected in one session and infussion was done in another session, a different day, without any issues. From what I understand, the science has… read more
Anxiety Vs, Depression, How Do I Know Which One Is Messing Up My Evening?
Sometimes, I'm just too overwhelmed to stay in bed and sleep. By the way, I'm glad you folks are there. 🦉
I started journaling on the trip out here to Alaska; 2012. I write things like the weather on the day, what current events are......News. Also stuff that happen around here that are not all that… read more
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