How Does A Person Decide They No Longer Require "Maintenance Drugs" Such As Revlimid?
Curt, I was quite advanced with this disease when it was found. Pray, try to be positive and take supplements. I’ve been very blessed, 2 1/2 yrs no disease detected per blood work since SCT.
I went off Revlimid for 7 months after being on it for 2 years with excellent results. Then my lambda started rising, mSpike not measurable, 10 mg Revlimid stopped the rising lambda. Who knows what will happen went you go off treatment. Everyone is so different but yet some similar results. It’s a game. And it’s your life you are playing with.
My doctor is considering taking me off maintenance because of angioedema and low white counts from Revlimid and then Pomalyst. First am getting a pet scan and bone marrow biopsy to see if the disease is minimal. Just switched to Pomalyst from Revlimid and I seem to be tolerating it though so might keep on with it.
I Have Stage 3 MM And Choose Not To Do SCT. What Are My Options?
Revlimed Maintenance
Has Anyone Decided To Forgo A Stem Cell Transplant And Only Do Maintenance Therapy? If Yes, How Are Things Going?