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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Corticosteroids" in Q&A. To see all results and access other features, sign up for free.

What Is The Role Of Methylprednisolone Injection In MM Treatment.

A MyMyelomaTeam Member asked a question 💭
Kerala, India
A MyMyelomaTeam Member

Corticosteroids – or steroids – are a key part of treatment for multiple myeloma (MM). They can help other drugs fight cancer cells and ease swelling. Smaller amounts can be combined with injection… read more

Has Anyone Found Out They Have Osteonecrosis (dying Bone) Anyplace Besides Their Jaw? Was There Anything Specific You Do To Manage It?

A MyMyelomaTeam Member asked a question 💭
Granbury-Acton, TX

I have a torn meniscus in my right knee and the Dr's are promising me I'll need a knee replacement someday. I am in remission for MM, but I also have osteoporosis and osteoarthritis. At a Dr's appt today, partly to determine how stable my bones would be to do the knee replacement, an x-ray revealed that I have some osteonecrosis. (I am waiting a while before doing the replacement, but we are monitoring how my knee is doing.) So - if you've been diagnosed with osteonecrosis (someplace besides… read more

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A MyMyelomaTeam Member

Hi Sara
Yes, steroids and bone drugs can cause osteonecrosis. Many on this site have mentioned they had osteonecrosis of the jaw, which I why I declined to take Zometa or any other drug like it. It… read more

Retina Changes In The Eye

A MyMyelomaTeam Member asked a question 💭
Boston (Milton), MA

Does anyone know the incidence of retinal tears, holes and detachments w myeloma patients and whether it’s the para protein or lenalidomide that increases one’s risk?

We have asked Dana-Farber oncologist And he really didn’t know nor did the Mass eye ear retina specialist

However, I have found many articles from retina journals and others that describe a relationship between each

I am wondering what experience any of you have had

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A MyMyelomaTeam Member

Janet,
I have read many articles about how MM affects the eyes. I just don’t think some doctors stay up to date and read.

Hello. QQ. Has Anyone Experienced Excessive Sweating During Their MM Treatments? I Take Dexamethasone, POMALYST And Daratumumab. Thank You.

A MyMyelomaTeam Member asked a question 💭
Portland, OR

When I am sleeping, I wind up changing my night shirt at least 4-times per evening, and then I sweat profusely randomly throughout the day. My Oncologist says she is not familiar with sweating being related to Cancer, however, I have read that (1) Diabetic Hypoglycemia (caused by the Steroids) might be an issue, and that (2) Neuropathy (which I have in both legs) can create the same problem, or (3) Endocarditis with the heart, or perhaps it’s just (4) General Anxiety Disorder. Is there any… read more

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A MyMyelomaTeam Member

You can Google him and watch one of his podcasts. I found his book easy to read and informative.

A Gowing, Tight Tummy

A MyMyelomaTeam Member asked a question 💭
Leyden, MA

In the last few days, someone spoke about their tummy growing round and protruding. They had a name for it. I don't know who spoke about it. We have been blaming my husband's 'pregnant belly' on Dara, but if this is actually something else, we'd like to know. It bothers him quite a bit. First, he just doesn't like it! He has trouble bending over...pushes on his lungs, making it hard to breath. His clothes don't fit, I'm not a skinny girl , so I get it, but the breathing is worrisome.

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A MyMyelomaTeam Member

Steroids! Ask to drop the dose. See an endocrinologist.

Dara Faspro, Pomalyst, Dexamethasone

A MyMyelomaTeam Member asked a question 💭
Lincoln, NE

Anyone received darafaspro, pomalyst and dexamethasone for relapsed mm and once your m spike light chains and immunoglobulin’s all in the normal range or even below normal for several months in a row been taken of any of these treating drugs?

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A MyMyelomaTeam Member

Thanks Donna 😀

Does MM Affect The Eyes?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

I am having recurrent Post Vitreous Detached of the Retina. I get flashing in my eyes. The Retina Specialist thinks it is from my past high corticosteroid use. I really don’t want to go blind.

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A MyMyelomaTeam Member

I just had an eye exam yesterday
I’m 66.9yrs old and my sight hasn’t changed in 8 years

I’m On Dara Every Other Week With Velcade. My Stomach Is Tender To The Touch And I Feel Nauseous. Can I Wait Until Thursday To See My Docto?

A MyMyelomaTeam Member asked a question 💭
Eugene, OR
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A MyMyelomaTeam Member

It's important to address nausea and tenderness promptly. Here are some tips from my knowledge base:

- Nausea Management: Consider taking nausea medications as soon as you get up or with breakfast… read more

My Husband Is In MM Deep Remission And Stopped Taking The Maintenance Dose. He Is Feeling Extreme Fatigue,lot Of Neuropathy.is This Normal?

A MyMyelomaTeam Member asked a question 💭
Ashland, AL
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A MyMyelomaTeam Member

Yes, it can be normal for someone in deep remission from multiple myeloma to experience extreme fatigue and neuropathy. Here are some key points:

- Fatigue: Fatigue is a common side effect of… read more

Weight Gain With MM Treatment?

A MyMyelomaTeam Member asked a question 💭
Scottsdale, AZ
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Multiple Myeloma and Eye Complications: What To Know Read Article...
A MyMyelomaTeam Member

Yes, it's the dexamethasone. The doctors usually let us taper down or completely get off dexamethasone after our myeloma is well controlled. Walk avoid processed carbohydrates. Don't beat yourself up… read more