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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Found Out They Have Osteonecrosis (dying Bone) Anyplace Besides Their Jaw? Was There Anything Specific You Do To Manage It?

A MyMyelomaTeam Member asked a question 💭
Granbury-Acton, TX

I have a torn meniscus in my right knee and the Dr's are promising me I'll need a knee replacement someday. I am in remission for MM, but I also have osteoporosis and osteoarthritis. At a Dr's appt today, partly to determine how stable my bones would be to do the knee replacement, an x-ray revealed that I have some osteonecrosis. (I am waiting a while before doing the replacement, but we are monitoring how my knee is doing.) So - if you've been diagnosed with osteonecrosis (someplace besides… read more

October 30
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A MyMyelomaTeam Member

Hi Sara,
Yes, steroids and bone drugs can cause osteonecrosis. Many on this site have mentioned they had osteonecrosis of the jaw, which I why I declined to take Zometa or any other drug like it. It does not build new bone, it just stops the bone from renewing itself. MM is constantly trying to break down the bones and they can’t be replaced fast enough. I’m trying Calcium 1200+mg (MRM Bone Maximizer III) with extra D3 & K2 to build new bone. I am Smoldering. I also have osteoarthritis, and osteoporosis at -3.4, from a high corticosteroid I was on. The calcium does not seem to be enough, so I’m adding Strontium before bedtime. See @A MyMyelomaTeam Member for his story on how he built back his shoulder in record time. You might be able to find answers to past questions about osteonecrosis on this site, in Q & A.
Paula🌹

October 30
A MyMyelomaTeam Member

Osteonecrosis (ONJ) is a serious condition often associated with multiple myeloma and its treatments, particularly bisphosphonates like Zometa. While the context provided focuses on ONJ, it does not mention osteonecrosis in other parts of the body. Here are some key points from my knowledge base:

- Symptoms of ONJ: Exposed Show Full Answer

Osteonecrosis (ONJ) is a serious condition often associated with multiple myeloma and its treatments, particularly bisphosphonates like Zometa. While the context provided focuses on ONJ, it does not mention osteonecrosis in other parts of the body. Here are some key points from my knowledge base:

- Symptoms of ONJ: Exposed jawbone, swelling of the gums, loose teeth, drainage from areas in the oral cavity that won’t heal, numbness or heaviness in the mouth and jaw, mouth infections.
- Risk Factors for ONJ: Invasive dental procedures, dental implants, IV bisphosphonate treatment, longer duration of bisphosphonate treatment, use of corticosteroids, multiple myeloma.
- Management and Treatment of ONJ: Surgery or medications, preventive dental care, pausing bisphosphonate or denosumab treatment around the time of invasive dental procedures.

For osteonecrosis in other parts of the body, it is essential to consult with your healthcare provider for specific management and treatment options. Regular monitoring and preventive care are crucial.

October 30

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