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Does Anyone Else Have Issues With Taste?
I lost my sense of taste after I had covid back in January. It is not totally gone but pretty messed up. For instance, stake tastes like cardboard wrapped in tinfoil. A lot of foods taste kind of metallic. The more complex the food the worse it seems to be and Wine or Alcohol is so sharp it is undrinkable. It may be just the covid but I was wondering if it could have something to do with the combination of Covid and Multiple Myeloma?
Anyone else having this issue?
Yes, many people with myeloma experience changes in taste. Treatments like chemotherapy, stem cell transplants, and medications such as Velcade (bortezomib) and Revlimid (lenalidomide) can reduce… read more
Did Anyone Have Their Teeth Just Crumble And Come Out In Pieces?
Do All MM Drugs Cause Hair To Fall Out?
I think Dex and other steroids wouldn’t cause baldness but are there other drugs that don’t cause hair to fall out?
That matches my experience too. I had 5 days in the hospital 24 hours per day, hooked up to an IV of Cyclophosphamide, Etoposide, and Cisplatin to prepare for the completion of the ASCT process. I had… read more
How Can U Change Your Location On Your Profile?
I live 7n Evansville, IN not Evansville AR. I'd like to talk with those who live close to me and what facilities and doctors they see.
Hi everyone...hope all is well with everyone have a beautiful sunday
What Treatment Has Helped With Neuropathy?
My doctor prescribed Gabapentin to help, but the neuropathy doesn’t seem much better. I am trying to build strength and not need a walker to get around since my hospital,stay for pneumonia, but the “pillow feet” make me uneasy. Both feet feel numb.
Has anyone found something that helps more with the neuropathy?
Also, you might try Amitriptyline.
Who Has A Personal Story Of Faith? Spiritual Or Otherwise.
Shipmate Pbaldini, I read your story about faith. Wow, that was. Very powerful story about your children. I too have great faith in our Lord, Jesus Christ, without him we are nothing. I also say… read more
Have You Thought About How You Will Be Cared For When You Can’t Do It Yourself And The Cost?
I got quotes today at the start at $40/hr for Companion Care. This is the minimum price for over 8 hours a day. 4 hours a day is $60/hr. I don’t think Medicare pays for this?
@A MyMyelomaTeam Member It's family and he was a great father and man.
I Have Witnessed Some Married Couples Separate And Divorce When One Of The Partner Gets Cancer. What Causes This Unfortunate Situation?
I haven’t had any side effects except fatigue. 2-3 days after taking Valcade injections Been taking for last 8 years
Did You Have Sticker Shock When Planning Your Funeral?
I was surprised at the lack of choices of where to be buried at the cemetery. Covid filled it up. The cost was very surprising. Has anyone else experienced this?
We signed up with "Smart Cremation" which has services in several states. They are not yet in all 50 states. We are paying off our "cremation" monthly $35 a month pp. Super cheap. Also, when… read more
I Will Start Velcade Soon. What Can I Expect?
I am close to 94 yrs and will start Velcade next week. Where is it injected and what are the side affects?
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