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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Anyone Doin Natural Means Of Treatment With Or Without Conventional Treatments?

A MyMyelomaTeam Member asked a question 💭
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A MyMyelomaTeam Member

Some people living with multiple myeloma choose to integrate natural or alternative therapies alongside conventional treatments to manage symptoms and side effects. Here are some complementary… read more

Does Anyone Have Any Experience Dealing With A Holistic (organic) Approach To Managing Multiple Myeloma, Vs Oncology Tactics?

A MyMyelomaTeam Member asked a question 💭
Portland, OR

Hello. Does anyone have any experience dealing with a more holistic (organic) approach to managing Multiple Myeloma (MM), as opposed to Chemotherapy and Radiation
Over the past 4-years I have had a Stem Cell Transplant for MM, been diagnosed with Ewing’s Sarcoma, and put both Cancers in remission after intense rounds of Chemo and Radiation
Now, the MM is back, and my Oncologist has me on a Pomalyst and Dexamethazone combination for treatment, and my body is just "over" all these toxins being… read more

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A MyMyelomaTeam Member

Thank you for sharing the link to "Natural Remedies for MM". This was very helpful. It does not sound like going cold turkey with just organic remedies would be a good approach.

Has Anyone Used Turkey Tail Mushroom In Their Arsenal Of Medicine To Keep Their Multiple Myeloma In Check?

A MyMyelomaTeam Member asked a question 💭
Hutchinson, KS
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A MyMyelomaTeam Member

I'm fully following my oncologist orders. I'm currently using Darzalex and Kyprolis as my immunotherapy. I was just interested if Turkey Tail Mushrooms would help keep my Myeloma in check and improve… read more

Neurothropy-tried Galopentin- No! Any New Ideas?

A MyMyelomaTeam Member asked a question 💭
Lake Waccamaw, NC
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A MyMyelomaTeam Member

See if you can get a referral to a pain management specialist. I consulted with one when I was in the hospital for my SCT and after a few variations, found a drug combination that worked.

Any Suggestions To Treat Neuropathy?

A MyMyelomaTeam Member asked a question 💭
Ottawa,Ontario,Canada
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A MyMyelomaTeam Member

Hi John
I wish more Oncologists knew about Alpha Lipoic Acid supplements and Nutritional yeast. Both can protect the nerves. Once neuropathy has occurred, I don’t know if they help but it’s worth a… read more

What Can Help With The Neuropathy?

A MyMyelomaTeam Member asked a question 💭
Princeton, IN
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Multiple Myeloma Relapse Symptoms: 7 To Look Out For Read Article...
A MyMyelomaTeam Member

Managing peripheral neuropathy in myeloma can involve several approaches:

Medications
- Prescription Medications: Antidepressants (e.g., Cymbalta, Elavil), anticonvulsants (e.g., Neurontin, Lyrica… read more

For Bone Pain,we Have Tried Tramadol And Extra Strength Aleve, With Barely Any Relief. What Else Is There For Safe ,long Term Use ?

A MyMyelomaTeam Member asked a question 💭
Ardmore, OK

My husband will start chemo next week.

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Managing Nausea and Multiple Myeloma Read Article...
A MyMyelomaTeam Member

For managing bone pain in myeloma, especially if Tramadol and Extra Strength Aleve have not been effective, consider the following options mentioned in my knowledge base:

- OxyContin (Oxycodone)… read more

Hi Has Anyone Got Any Information On Backache Please

A MyMyelomaTeam Member asked a question 💭
Chepstow wales uk

My paraprotien figures are continuing to rise.Hopefully they will start to come down now i hsve started a course of lanidomide.the only thing worrying me at the moment is a continuous pain in my right side and lower back.The best way to describe it is the same as a severe stitch.I have tried all manner of pain killers,nothing seems to work it just constantly aches.

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A MyMyelomaTeam Member

I agree with Mark. Talk to your doctor about any new pain.

Is Back Pain Quite Common And Should I Take Any Medication?

A MyMyelomaTeam Member asked a question 💭
Sydney, AU
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A MyMyelomaTeam Member

Thank you for your help.

Hi! Has Anyone Benefited From Infrared Therapy, Hyperbaric Oxygen Or Ozone Therapy Or Similar?

A MyMyelomaTeam Member asked a question 💭
Roodepoort, ZA
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A MyMyelomaTeam Member

The context provided does not mention infrared therapy, hyperbaric oxygen, or ozone therapy specifically. However, it does discuss various complementary therapies that some people with multiple… read more