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Neurothropy-tried Galopentin- No! Any New Ideas?

A MyMyelomaTeam Member asked a question 💭
Lake Waccamaw, NC
3 days ago
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A MyMyelomaTeam Member

See if you can get a referral to a pain management specialist. I consulted with one when I was in the hospital for my SCT and after a few variations, found a drug combination that worked.

18 hours ago
A MyMyelomaTeam Member

I've stopped all opioids 6 months ago and in the last month or so, I've stopped my daily Ritalin. Besides Ritalin providing focus and energy, it is also a pain reliever.

I've recently had some severe neuropathy problems late at night, such as sharp stabbing pains in both my big toes one night and significant cramping another night.

In both cases, I took 60mg (6 - 10mg) under the tounge quick dissolve melatonin. In both cases, the pain was completely gone in less then 30 seconds and I comfortably slept through the night.

3 days ago (edited)
A MyMyelomaTeam Member

Some solutions depend on the level of pain you experience with your neuropathy. I do not use medications.

- Check my page for an illustration video applying Kinesiology tape on your feet.
- Some cancer centers offer Accupuncture treatment
-Apply moisturizer on your feet and hands if they are dry.
-Ortho or Skechers orthopedic shoes are quite stylish.
-Orthopedic socks sold by Ortho are very smooth and help with blood circulation.
-Swimming laps at the YMCA if you are physically capable.
-

2 days ago
A MyMyelomaTeam Member

Managing peripheral neuropathy in myeloma can be challenging. If Gabapentin didn't work for you, here are some alternatives:

- Medications:
- Lyrica (Pregabalin)
- Cymbalta (Duloxetine)
- Elavil (Amitriptyline)

- Physical Therapy and Exercise:
- Swimming
- Biking
- Stretching

- Complementary Therapies
- Show Full Answer

Managing peripheral neuropathy in myeloma can be challenging. If Gabapentin didn't work for you, here are some alternatives:

- Medications:
- Lyrica (Pregabalin)
- Cymbalta (Duloxetine)
- Elavil (Amitriptyline)

- Physical Therapy and Exercise:
- Swimming
- Biking
- Stretching

- Complementary Therapies:
- Acupuncture
- Massage
- Yoga
- Meditation

- Orthopedic Shoes: Supportive shoes like those from Orthofeet

- Supplements:
- Vitamin B complex
- B-12

- Medical Marijuana and CBD: Where legally available

Always consult your doctor before starting any new treatment.

3 days ago

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