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Have You Seen The Latest? Blenrep Vs Darzalex?
https://meetings.asco.org/abstracts-presentatio...
oh, than, never mind. I have some vision problems and not so sure if having more is worth it; other side effects too. About traveling; the more side effects the more apprehension of traveling far.
Is Anyone Out There On A Chemo Infusion Called Blenrep?
It is a monotherapy for relapsed multiple myeloma. I get the infusion once/month.
I'll find it. Calling is a good suggestion. Thanks again.
Barbara
Hi, Anyone Else Dealing With Extra-medullary Myeloma (EMM)?
My version of multiple myeloma is rare apparently. I have extra-medullary myeloma, and it has manifested itself in two liver lesions, and now a soft-tissue plasmacytoma on my right gluteus medius muscle. The liver lesions resolved under treatment of Daratumamab-Pomalidomide-Dexamethasone, over 18 months. In April and July 2024, MRI results showed a growing plasmacytoma on my muscle, which has been biopsied and is definitely MM, with the same markers as before, CD138 and CD56. Biopsy results… read more
Keith
It sounds like you are knowledgeable about the treatments. Our bodies are like cars, they replace parts that don’t works or if that doesn’t work, replace another one, then fix the dents.… read more
Has Anyone Had Blenrep As An Infusion Treatment?
Blenrep is a conjugate drug consisting of a monoclonal antibody and a chemo drug given as an infusion for 30 minutes every 3 weeks. It's for patients who have had 4 or more prior failed treatments.
My husband had his second infusion today.
Kale
I’ve been reading up on kale and have started kale smoothies this week. (Hide the taste with blueberries). Anyone eating kale and having good results?
@A MyMyelomaTeam Member good luck towards remission🙏🙏🙏
My Signicant Other Steve, Is Being Asked To Do The CarT Procedure Soon. Just Wondering How Clients Have Experienced It, & Any Regrets?
Steve is 69 years old, & a 14 year MM survivor , & just completed his second autologous stem cell transplant 4.5 months ago.
I can't tell you. I have had MM for 10 years in April. It's great that it's autologous no rejection. Prayers for you, Please if possible keep us up-to-date if you are able.
How To Help My Husband To Eat.
I purchased a juicer and blender. Not that he doesn’t eat but we started a mostly plant based diet and it’s just easier to get multiple servings of fruits and veggies in him. He loves the juicer.
I Had A SCT In Sept. 1 1/2 Weeks Ago I Started Seeing Floaters In My Right And Now In Left Also. Is This An MM Complication?
Deb6, Please make another call into your transplant team and your Oncologist. Get the medications name and dosage. Make an appointment with your eye doctor and explain that you had a Stem Cell… read more
Living With MM Without A SCT
For those that have received MM Treatment, got to Complete Remission being MRD Negative without a SCT, a few questions.
1) What treatment and for how long before being declared MRD Negative?
2) What level of Negative-
10 -5 (none per 100,000) or 10 -6 (none per million)
If 10 -6, clonoSEQ or PCS or another testing method
3) What Maintenance or No Maintenance?
4) Have you ever had a Relapse - if so, what action did you take
5) How long in Remission without a SCT
6) Diet & Supplements… read more
Ask for more medication. I’m working for commission. Others are working for Jeffrey Epstein gang.
I'm Interested To Find Out How Many People On This Forum Have Been Deemed Their Cancer Is In Remission And Are - No Longer Taking MM Meds ?
I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.
I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.
MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...
Thanks,
Larry2
I was on about 8years remission after stem cell transplant. I am on relapse on Carfilzo and Dex . I am on my 3rd circle
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