Since MM is currently not curable but treatable, no oncologist should tell a MM patient they are “cancer free”. Instead they should say MRD negative or in remission. I was told by my UCSD MM specialist that I will always be on some type of medication even in remission

I was told at diagnoses that this cancer is NOT CURABLE but treable. I have been in treatment since April 2020. Took my M spike number from 3.75 to 0.28 and I am currently on the controlled treatment stage. Which means I take Rx Revelimad 10mg three days a week Monday Wednesday and Friday. Currently I have 13 months of blood draws results in NOT DETECTED. However my doctor has NEVER talked about stopping my Rx Revelimad.
Amen and Amen. Jack

I think I answered this; I had been in remission since almost the beginning of treatment. Treatment started in Nov. 2018 and remission started in April 2019. All numbers stayed within range, no abnormal protein pattern, and Rev.started to cause problems.....DR.approved my getting off treatment, but he would rather I stuck to maintenance protocol. So far, after close to 2.5 yrs, off, I'm still ok. 🤞

I'm doing plenty of research about gut bacteria and how its type of strains can either help to keep MM at bay or contribute to its progression. Once I've compiled all of my reading into info that I can clearly express, I'll Post my findings.

More than just MM Meds, we can contribute to our success. There's plenty of Case Studies that on the subject matter.

I was on maintenance Revlimid for 5 years and one day I came down with a bacterial infection in my back and had to be hospitalized. They took me off Revlimid and had to be on an IV antibiotic for 2 months. I was tested after I was done with the antibiotics and deemed in Remission. It was my choice to stay off of Revlimid and have been now for 5 years.