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For Those Of You Who Have Had Pelvic Fractures From MM. What Was Your Treatment And Do You Have Any Advice? What Pain Meds Did You Take?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

My pelvis has been deteriorating and now I believe is fractured. Lots of pinching pain. There is more pain trying to change position while lying down.

November 3
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A MyMyelomaTeam Member

Paula, I understand what you’re saying it’s like opening Pandora’s box. You what to know & yet you don’t. God bless you & prayers help. Sometimes it feels like there not heard, but we just have to have faith!

November 5
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
Bob,
At last diagnosis I am Smoldering. I had a fracture on the right side of my pelvis/hip in 2020, which is how I found out I was MGUS. No trauma for either incident. I have severe osteoporosis, so this pain has been coming on for a few weeks. I saw an Orthopedic Oncologist 6 months ago and asked about kyphoplasty , but he said there was nothing he could do. I don’t know if this is from MM. of course I’m worried it has moved me to MM. I will contact my Oncologist Monday.
Paula🌹

November 3
A MyMyelomaTeam Member

My hip fracture on Mar. 19 this year was what led to my MM diagnosis. I took some prednisone for three days, but that was the only treatment for the fracture. I used crutches and a cane for 4 or 5 weeks after. Since then I’ve gone through 4 cycles of induction therapy with the 4-drug panel and monthly Zometa. I’m in remission, and I feel great. Stem cell transplant is next in a month or two. My left pelvis is still a little tender at times, but I’m not in pain.

November 6
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
Hi Erin, I had a CAT scan that showed that my pelvis is deteriorating. I have osteoporosis, osteoarthritis and SMM, which greatly affect it. I see my Oncologist in December, so we will see if she will move up the date of my PET scan. Some days I don’t notice it that much and others I do. I’m grateful it’s not too bad yet and that I can still drive and walk.
Paula 🌹

5 days ago
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
I’m glad you found out why your hip fractured, and you are healing.
Paula🌹

November 6 (edited)

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