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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Any Team Members In MM Had Spinal Cord Compression Issues?Share And Explain

A MyMyelomaTeam Member asked a question πŸ’­
Singapore

I just got off my pet scan results and it show that my spinal cord compression on the lumbar spine and swelling.

3 days ago
β€’
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A MyMyelomaTeam Member

It's nerve wracking for sure. Getting a caregiver/driver. Making appointments, worrying about what insurance is going to pay. Trying not to get another infection. Hoping the treatments work. Hoping the nurses are sweet etc. It's very hard in the beginning. It usually does get better. The first year or so is usually the hardest. I couldn't think too far ahead. One day at a time.

1 day ago
A MyMyelomaTeam Member

Thank you All who responded to this post πŸ™πŸ‘ and I wandering how you all can manage to go for the process and surgery it’s looks like a bit tough or hard to handle (scary) and its take time to recover and cope with the pain and situation (stress).
Sometimes my thinking this MM are connect to one another problem,it seems like but (You can do it and so do l
Thank you very much and take care be good always πŸ€’πŸ«‘πŸ₯΅

2 days ago
A MyMyelomaTeam Member

Spinal cord compression has to be dealt with ASAP. Usually surgery or radiation or a combination of both. They usually give steriods for the swelling.

2 days ago
A MyMyelomaTeam Member

I had 4 compression fractures and I went to a Neurosurgeon to see about Kyphoplasty but he said no surgery since they had already healed. He is thinking about putting a back brace on me just when I am walking, working in my flower bed, cleaning or cooking but he does not want me to wear it all the time. I do not have any nerve damage or muscle damage. Hope you are doing okay

3 days ago
A MyMyelomaTeam Member

Hi Salli - I have no experience with Ivermectin. I know people take it. I don’t know what it can do against MM but it is helpful for parasites.

23 hours ago

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