Mary,
I did not tell my adult children for months. The 2 oldest weren’t bothered at all when I finally told them. The youngest was upset, but I told her MM is like real life, you never know when you are going to die. There are numerous testimonies of living for years. I told my siblings months after that in an email. One of them wrote back and said I better die quickly before the bad stuff happens. I was hurt at first, then laughed. It was just like her to be blunt. I delayed the longest the groups and Guilds I belonged to. Covid helped in that regard. Eventually I told them and one of them has a sister with MM. she’s had it for 15-20 years, so she thought it was nothing. I’ve met her sister. You could see how tired she was. Do what you want to do. There are no rules. I finally told people because I couldn’t lie and I couldn’t find anymore excuses for not visiting or traveling or helping.
Paula🌹

I was not sick when I was diagnosed in 2019 , so me being me I thought is Bull ! Fast forward I really feeling it and it's getting harder and harder to keep up the secret.

I have neighbor that use to be a reporter and still treat every thing in life as a story .she knows nothing about my disease, but already driving me crazy as to why I'm so tired

God it's annoying! Questions all the time about why I don't walk anymore ,who's my Dr, why did I have that nasty fall in Aug on and on ....it's depressing!

So I keep my secret

Thank you and I totally feel the same. I'm a proud and private person, but most people can't respect that and feel the need to tell me how to deal with my life .

I am going on 7 months and in secrecy with my employment, family & friends. I only told my daughter and my girlfriend who had a need to know. I have asked my daughter to handle my affairs when I no longer can and my girlfriend had to know. But I didn't tell them I was high risk and that I could be gone in a couple of years. I still feel fine and show or feel no symptoms or side effects from medication, so it is not 100% real for me yet. But I do believe keeping it to yourself is best if you don't need people worrying about you or labeling you. Hoping I can go at least 2 more years to retire and focus more on healing.

Mary,
Reporters are naturally curious and maybe concerned and want to help. Think of your interaction with your neighbor in a new light of someone who cares. That someone maybe the one who helps you when you least expect to need the help. Accidents happen. Wouldn’t you rather they knew so they could look out for you, in case you fall? My neighbor was sitting in her driveway, waiting for someone to help her up, she was there a while. Nobody stopped.
Paula🌹