Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Necrosis Of The Jaw

A MyMyelomaTeam Member asked a question 💭
Leyden, MA

Hi, just wanted to tell you a little of what I have learned this week. My husband Ed, (was diagnosed with MM in 2016) has Necrosis of the jaw. He was on Zometa for three years. Longer than recommended. He has recently had to have some teeth pulled. They were just crumbling, and his own dentist could not keep up with them. She spoke to a surgeon Ed has seen in the past, who had not wanted to pull any of his teeth, because of the necrosis. The surgeon agreed that they would have to come out… read more

January 21
View reactions
A MyMyelomaTeam Member

I had to have my teeth pulled because I was going to have a Stem Cell Transplant. They were worried as I had a few infections due to the condition of my teeth. I had lost many teeth over the years. I had all my teeth pulled and then had my Transplant after a couple months. All my numbers are doing well and I now have have some great dentures. Even when I had teeth they never looked this good!

July 20
A MyMyelomaTeam Member

I had too have all my top teeth pulled because they were crumbling so I went too a dental surgeon and he pulled two too see how well I would heal then after I healed up fine he pulled the rest. The plan was too get dentures but I have been sick off and on since March and just haven’t been able too get too the denturist too get them so maybe soon because I am starting too feel better.

January 21
A MyMyelomaTeam Member

Apparently it's hard to find oral surgeons that know how to treat osteonecrosis of the jaw. Myeloma patients are more at risk because we are on bisphosphonates longer than any other patients. I hope the worst is over for Ed.

January 21
A MyMyelomaTeam Member

Hey Wendell. When do you get to be fitted for your new teeth? If you like to eat as much as I do, not having teeth has to be hard. 🥰

July 21
A MyMyelomaTeam Member

We need to check with pharmacist about if one drug can interact badly with another drug we are taking

May 18

Related content

View All

Osteonecrosis Of The Jaw

A MyMyelomaTeam Member asked a question 💭
Cicero, NY

Can Bisphosphonates Cause Osteonecrosis Of The Femoral Head(avascular Necrosis).

A MyMyelomaTeam Member asked a question 💭
Fayetteville, AR

Periodontal

A MyMyelomaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in