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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Osteonecrosis Of The Jaw

A MyMyelomaTeam Member asked a question 💭
Cicero, NY

Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.

October 5, 2021
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A MyMyelomaTeam Member

This is the only oral surgeon in Syracuse area that does this kind of work. In a month we will be in Florida and will be able to get an oncology dental surgeon.

October 18, 2021
A MyMyelomaTeam Member

I guess you mean infected gum area??

October 15, 2021
A MyMyelomaTeam Member

I had osteonecrosis from Xgeva, and it was taken care of with hyperbolic oxygen treatments. No pain at all since the treatments!! Ask your husband’s doctor. It may be an option for him. 💕

January 14, 2022
A MyMyelomaTeam Member

Praying for his pain to go away

October 17, 2021
A MyMyelomaTeam Member

I read some where 30% of MM Patients will get Osteonecrosis from taken bone strengthening medication So far I haven’t had any issues since I had to teeth pulled. I pray that I don’t They are putting me back on Zometa on Monday All I can do is pray it doesn’t cause me any issues

October 17, 2021

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Is That Normal For Anyone Else. Also Twice In The Last Year I Have Had Increase Jaw Pain That Last For About 2 Minutes Only One Side/ Thanks

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Anyone Else Have Osteonecrosis Of The Jaw(ONJ)? I Have Had It For About 5 Years Now As A Result Of Zometa Infusions.

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