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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

AM I RELAPSING?

By A MyMyelomaTeam Member 177 answers

What Myeloma Symptoms Keep You Up At Night?

By A MyMyelomaTeam Member 124 answers

What's On Your Holiday Wish List That Could Improve Your Life With Myeloma?

By A MyMyelomaTeam Member 69 answers

Hello My Beautiful MM Family, I Had A SCT, In October, I’m Feeling Great, What Are The Chances Of Relapsing After A Sct? Thank You

By A MyMyelomaTeam Member 74 answers
4729 questions

I Have Had SMM For 5 Months. What Are The High Risk Genetics That Can Cause Your SMM To Escalate To MM? Or Make It More Likely For You To

A MyMyelomaTeam Member asked a question 💭
Orange County, CA

develop Mm?

A MyMyelomaTeam Member

Sign up to the Facebook Forum - Beating Multiple Myeloma with a Naturopathic Approach.

They definitely agree with taking MM Meds, as and when needed, but they also Focus on a Plant Based Diet and… read more

September 14

Why Am I In Pain

A MyMyelomaTeam Member asked a question 💭
Florida, NY
A MyMyelomaTeam Member

Pain in multiple myeloma can be due to several factors:

- Bone Lesions: Multiple myeloma often causes bone lesions, which can lead to significant pain
- Kidney Problems: High doses of certain pain… read more

September 14

I Had A Stem Cell 3 Years Ago But Only Partial Remission So Always On Maintenance Drugs. Car T Now Being Suggested. Has Anyone Had One?

A MyMyelomaTeam Member asked a question 💭
Levittown, PA
A MyMyelomaTeam Member

CAR-T cell therapy has shown promising results for multiple myeloma, especially for those with hard-to-treat cases. Here are some key points from my knowledge base:

- Effectiveness: In clinicalread more

September 14

Can The RSV Vacc. Negatively Interact With Usual Meds We Take?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

I usually take a Curcumin supplement twice daily.
Yesterday I had my RSV shot and wondering if I should wait any length of time before resuming them.
My usual fatigue has grown into FATIGUE since the vaccination. Caffeine doesn't really pick me up....a little, but I'd rather take a nap. I'm a little achy but tolerable. One good point; no sore arm!🙂

A MyMyelomaTeam Member

Tricia; the doctor didn't advise me. It was just in my head to ask....😇

September 15

I Had My Stem Cell Transplant In May 2024 & Recently In Remission. I Want To Know Any Tips To Staying In Remission.

A MyMyelomaTeam Member asked a question 💭
Charlotte, NC
A MyMyelomaTeam Member

Hi
Cindy Brown2
Hope you’re doing well and staying well and do not forget to take your medication and follow up appointment, If you have any difficulties or uncomfortable try talk to your… read more

September 14

Can Someone Explain To Me What This Fish Report Means :cells Positive For Igh T(11:14), CKS1b(1q) Addition(lowlevel,+1extrasignal),p53 Delit

A MyMyelomaTeam Member asked a question 💭
Oakland, NJ
A MyMyelomaTeam Member

Thank you Paula , I will rest Larry2 story 🙏💕

October 28

I Am Experiencing Muscle Cramps Mostly In The Legs. Has Anyone Else Experienced This?

A MyMyelomaTeam Member asked a question 💭
El Dorado Hills, CA
A MyMyelomaTeam Member

thanks for the response

October 8

Hi, Has Anyone Developed Osteonecrosis Of The Jaw From Xgeva Injections As I Have?

A MyMyelomaTeam Member asked a question 💭

In addition I also now have a chronic infection there as which they are finding difficult to treat because doing so as they normally would could definitely accelerate the Osteonecrosis. Four specialties have been involved - Dentist, Endodontist, Periodontist and Oral Surgeon. To date I've had four rounds of antibiotics which are only able suppress the infection for a short time but are unable to cure it. They are looking to extract a tooth and are in discussion with my Oncologist in that… read more

A MyMyelomaTeam Member

So sorry this is happening to you. Primetime Gail had osteonecrosis. Some others have too.

September 14

Do I Need To Take Acyclovir?

A MyMyelomaTeam Member asked a question 💭
Chicago, IL
A MyMyelomaTeam Member

What's the CAR-T cell therapy like?

September 18

Why Are Extreme Fatigue, Exhaustion And Debilitating Tiredness Constant Companions Of The Multiple Myeloma Patient? What Can Be Done?

A MyMyelomaTeam Member asked a question 💭
Online
A MyMyelomaTeam Member

Extreme fatigue, exhaustion, and debilitating tiredness are common in multiple myeloma patients due to several factors:

Causes of Fatigue in Multiple Myeloma
1. Anemia: Myeloma cells interfere with… read more

September 14
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