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I Was Diagnosed With MM In 2018. Used Revilmed And Velcaid. My Doctor Just Told Me I Am In Remission Because There Were No Detectable M-cell
In my blood. I did Not have stem cell infusion. Is this seem true
During my 10 months treatment in 2018 I had steroids, Revlimid & Dexamethasone followed by an autologous SCT. Just had a small biological relapse. Starting 2nd line injections treatment nxt week as… read more
When Is The Optimum Time To Get A Stem Cell Transplant?
I am treated by two separate oncologists for multiple myeloma: my regular oncologist's position is I should do the stem cell transplant while I am doing well in my treatment (meaning ASAP!). My Uni. of Penn Hospital oncologist who is responsible for my stem cell collection (which was completed in July 2024) takes the position that as long as I am doing well in my treatment, there is no rush to do the stem cell transplant.
I had my ASCT at Dana Farber and they required I have the ASCT after 3 lines of novel therapies. More than 3 different treatments, the ASCT is less likely to be effective. I was hoping I could go… read more
Other Options Rather Than Stem Cell Transplant
Oncologist preparing for stem cell transplant for my husband, but after careful research, he does not know if he wants to undergo such a grueling procedure which has no guarantee of remission. He is doing quite well with his weekly chemo treatments which have astounded his doctors. Has anyone used alternative measures other than stem cell transplant, and instead decided on another version of treatment. We are so overwhelmed and indecisive about this.
In my case, primary treatment (Revlamid/Velcade/Dex) took my m-spike down to 0.2, but never to zero. Also, primary treatment did not get rid of the high risk mutations in my bone marrow. The Stem Cell… read more
If You Have High Or Low Plasma Cells Before Your Stem Cell Transplant Does That Affect The Outcome Of Your Remission Yes Or No?
Yes, having high or low plasma cells before your stem cell transplant can affect the outcome of your remission. If myeloma quickly goes into complete remission following treatment, a positive… read more
Is A Stem Cell Transplant Inevitable?
I am newly diagnosed I have stage 1 MM. doctor is putting me a few meds which is saying is a low form of chemo. and Suggested I go get stem cells ready in case I may need a SCT. Is it inevitable that as this progresses I will definitely have to do the stem cell transplant?
I wish your husband great success in car t,,,I'm finished now and so far my tests have great results 0 m spike,and petscan shows no uptakes....I'm convinced this is the cure,and goodbye to my… read more
Stem Cell Harvesting
What do you have to share about your experiences with the Stem Cell Harvesting process.
-How long do they take to harvest the stem cells?
- What are the side effects of the medications to enable stem cell harvesting?
- Are there any issues or effects on your body during and soon after stem cell harvest?
- Hoe long does your body feel the impact and time to replenish stem cells?
-Any other input?
Stem cell harvesting is a crucial step in the process of stem cell transplantation for multiple myeloma. Here are the key points:
- Preparation: Before harvesting, doctors administer growth factors… read more
Does Stem Cell Transplant Help
I have stem cells collected and stored since May 2018. Waiting for transplant. Do I have to get a dental Clarence done?
To me it makes no sense to have a sct,,with today's new procedures like car t cell therapy, after this no meds no matance, no drugs,just checks every few months...
Is There A Loss Of MSCs, PSCs Along With HSCs During Stem Cell Transplant?
Question re stem cell transplant - Bone marrow contains several kinds of stem cells Hematopoitic (HSC), Mesenchymal (MSC) and Parenchymal (PSC). We hear only about (pre-collected) HSCs being inserted back. HSCs regenerate RBCs, WBCs, and Platelets. Other stem cells regenerate bone/cartiledge tissues and so on. What happens to loss of these stem cells due to Melphalan? Are these other stem cells collected and reinserted (I hope they are)? I do not see any reference material but I am sure some… read more
Hey All I Hope That You're Hanging In There. Just Had A Barrage Of MRIs And CTS. I Had Stem Cell Going On 2 Years In July. I Still Have Pain
Does anybody else have pain after they done stem cell? I do have mrd above 100, and I think I feel pretty well but every now and then the back every place I was feeling bad before I had the main treatment. Just wondering I'm still on maintenance. It's weird when they say no everything looks fine, and you don't feel fine
Back pain has been with me throughout the 2 years I have had mm finally I’m getting kyphoplasty done 6-21-24 in hopes of getting rid of this pain
My coworkers husband had it done and she said he’s… read more
I Am Approaching Time For My Stem Cell Transplant…would Love To Hear How That Went From Anyone Who Has Had One.
On MyMyelomaTeam, more than 12,000 members come together to ask questions, give advice, and share their stories with others who understand life with multiple myeloma. Are you considering a stem cell… read more
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