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Discontinuing Revlimid And Starting POMALYST While On Maintenance Therapy
Due to a recurring itchy body rash developing when using Revlimid, I’ll be switching over pomalidomide with velcade and dex. POMALYST is 10 times more potent than that of lenalidomide. But what I’m reading, people seem to have less side effects although it’s in the same drug class. For those who are on POMALYST, what has been your experience?
Thanks !
I had the two Shingrix shots as well. I also take Valtrex 500 mg daily. Shingles were 😖 awful for me
Has Anyone Taken Pomalyst 2 Mg And Had To Go Up To 3 Mg? Was It A Big Adjustment?
I started with 2 mg in April 2023. My kappa light chains begin increasing in March so we increase the mg to 3. The kappa number did go down but in May we noticed an increase. So we are watching the… read more
Has Anyone Been Switched From Revlimid To Pomalyst? I Believe Pomalyst Is Newer.
The progression worked for me for a while then again relapsed. Joined a clinical trial in Aug 2021, lo dosage, and it holds everything down a maintenance drug at least, maybe a cure. I have not been… read more
Daratumumab+Dexamethasone For Smoldering Myloma And Al Amyloidosis
I am taking Daratumumab+Dexamethasone for SMM and AL Amyloidosis. Has anyone else taken Daratumumab+ Dexamethasone alone for SMM or AL Amyloidosis or both? Or does anyone take Daratumumab + another single drug for them? If so what? If you take a triplet also let me know what please.
I take Dara, revlimed, and dexamethasone for smm
For Those Taking Pomalyst And Dara Faspro When Do You Get Your Blood Tests Done. Halfway Thru The 21 Days Or After Your 7 Day Break?
I just go to get labs before my infusion or my xgeva shot. It only falls on my seven days off on occasion
Rev Holiday
After diagnosis 4/9/21 I started on Dara/Rev/Dex. My M-spike, light chains and all other lab values gradually shifted into the normal ranges. In May of 2023, with my M-spike near zero, we decided to stop the Rev, Dex and daily aspirin (continuing the monthly Darzalex Faspro injections). Since that time my M-Spike has slowly increased to .33 as of 9/27/2024 (light chains in normal range). My oncologist has suggested going back on Rev or maybe Pomalyst, (we’re waiting a couple of months to see… read more
I would follow the recommendations of your primary oncologist and myeloma specialist.
Carfilzomib
Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.
What Treatment Options Have You Used For Relapsing MM?
Unfortunately, after my SCT in Dec 2022, the MM has relapsed. It only took 10 months before it started to show up in blood tests. I had a bone marrow biopsy and the plasma cell percentage has now doubled from the value when I was initially diagnosed. So I'm curious to know if others have relapsed after a SCT and what was the next method of treatment used
We are looking to get me on Car-T cell therapy, but I do not yet qualify based on the number of refractory treatments (drugs that did not… read more
Thanks Larry. This us something I need to research before I decide to get tested
I'm starting to think that cancer/myeloma are mutations that just like every living being do everything they can to… read more
“Kyprolis (carfizomib), Proteasome Inhibitor. Symptoms, Side Effects, Did You Improve? How Long? How Are You Feeling? (before, During After?
I would like to learn: who are or were treated with “Kyprolis (carfizomib), Proteasome inhibitor. Symptoms, side effects, did you improve? How long? How are you now? (before, during after?
Has Anyone Been On Maintenance For A Long Time
It's just something you have to decide and take whatever comes. If my numbers go up consistently, then I will re-think. 🤫. I'm not saying this outloud.....
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