Doc Appt On The 18th To Discuss Starting Trent. SMM Is IGG Kappa Light Chain Diagnosis 1 Yr Ago. Terrified About The Cost. Medicare+sup.HELP
Medicare A, B, D and a supplement have worked well.
Medicare & Supplemental should cover most everything. I've had treatment and monitoring for 3 years with extensive imaging and 6 days hospital in 2021 and a kyphoplasty to fix my L4 plus multiple PET/CT, etc, etc, with significant Induction and Maintenance Meds. Well over a $1Mill involved. Just a few thousand out of pocket over the entire time.
I started as Stage 2 and 80+% bad plasma in 2021 - I'm currently Cancer Free and on No MM Meds.
Look at the Clinical Trial at Sloan Kettering - a Plant Based Diet and Supplements for MGUS and SMM without Treatment Meds. They've just Reported great process at the ASH 2024 Conference.
https://www.mskcc.org/cancer-care/clinical-tria...
Look at the $10 EBook - Beat Back Cancer Naturally by Dr Brandy. Consider Consulting with him - very inexpensive and he provides excellent Support.
18 months ago, I've transitioned to a Plant Based Diet & Key Supplements. My Labs are now excellent and require No MM Meds.
Plenty of details at my Story @A MyMyelomaTeam Member
Take Treatment when it's required - I always will - but avoid it whenever possible due to the serious damage it does to the Immune System.
If they discuss a SCT (Autologous Transplant) -
Read Dana-Farber's Dec 2023 Press Release. They now say - Keep the SCT in Reserve as your Last Resort. They now acknowledge the SCT causes too much damage to the Immune System, leading to too many infections of a more serious nature.
I know of people that are only SMM that have been told to get a SCT. I also know of people with active MM, had an Excellent Response from Induction and were still told to get a SCT. It's been the Marching Orders for years as the Standard of Care.
Dana-Farber has finally looked back at the Outcomes and they, the Founder of the Determination Trial that set the Standard are saying - Keep it In Reserve.
All the Best.
Thank you, I really appreciate it!
@A MyMyelomaTeam Member - All the best to you!🫠❤️ The Palliative Care Team associated with your treatment facilty is another support resource for sorting things out and referrals if needed. https://www.mymyelomateam.com/resources/palliat.... The Leukemia & Lymphoma Society (LLS) 1-877-557-2672 Co-Pay Assistance Program offers financial support toward the cost of insurance premiums, prescription drugs, labs, scans, tests, etc. Visit www.LLS.org/Copay & a prescription card. Other funding: www.LLS.org/finances. Your State Medical Assistance Office (Medicaid) can also help with medical expenses & will include retroactive back 3 months.
I am so grateful to have Medicare and my AARP United Healthcare supplement.
I do not pay co-pays. I've been through the stem cell transplant in 2019
and I've been on some form of treatment and IVIg ever since. The only thing
we pay is the hospital deductible every year. If I had gotten this when I
was still working, and with the insurance I had through work, we'd be
bankrupt. I am so grateful for Medicare. I've been in an ambulance 6 times
and we never paid a dime. Don't be worried about cost.
IgA Myeloma
I Know Any Type Of MM Is Bad. But Which Is The Worse To Have: IgA Kappa Or IgG Kappa?
What Type Of Myeloma Presents The Worse Prognosis?