TY. I've had Pet scan (no lesions) Bone Marrow Biopsiy, and Labs × 3 months now. I do have real intense achy type pain in my feet, legs, hips, that come on like a tornado and leave. Doc swears it's not related to SMM. I know my body better than anyone and this is a different type pain. I'm gonna let him know once more as I usually just ask, " Are you sure this is unrelated"? I'm told , " No your tests don't indicate it". These days they all think people want pain meds. That's not the case. Just gets my attention.

Kenneth I ramble also; prefer to call it venting, whIch I do quite a bit of in here, huh guys??? Hey, we are here for a reason; to get answers and the support is a bonus.
I vote for a second opinion; it can't hurt and you'll feel better knowing what's really going on.

I feel your pain Kenneth, I have a brother who just passed away a few weeks ago. We had service for him today. He also lived for today & neglected his body, many years of heavy drinking, which he stopped about 25 years ago. But continued with a bad diet & no exercise. He had many issues before he passed including a transplanted kidney that failed & too weak to get another one. He was 69 years old, I year older than me and we were very close. I had never experienced grieving like I am now. I would say try tackling 1 issue at a time to keep from getting overwhelmed. Probably good diet and exercise would be a place to start. Good luck & I hope you get it all under control.

I never thought about pain meds.....but yes, it makes sense sometimes; about giving pain meds to patients too easily.

Hi Ken before looking for a second opinion make sure you have had all the right tests. I asked for second opinion before I asked for the right tests like a bone marrow biopsy. I had my answers by the time the tests were done. I was initially diagnosis with just MGUS for a year and had blood tests every six months. I had a lot of pain so asked for the BMB as a result of which I was upgraded to smoldering and was then entitled to PET scan. The second opinion in my case was useless. I am in Canada so things are a little different with our health care system.