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Are SCT Worth I Did Not Have One As I Am Two Years Post Treatment In Remission And A Chap Sat Next To Me In Treatment His SCT 1 Year Clear.

A MyMyelomaTeam Member asked a question 💭
Maidstone Kent England
October 16
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A MyMyelomaTeam Member

I have aggressive myeloma however I responded well with induction and I had a SCT and have been MRD negative for 3.5 years now and just take Revlimid I do have minor side effects like fatigue and toes are numb . Some types of myeloma respond well without SCT so it’s best to consult your myeloma specialist
Best wishes

October 17
A MyMyelomaTeam Member

Paul, not all patients have to have a transplant. Some patients with standard risk myeloma are getting to mrd negativity with induction. They are able to go straight to maintenance. I needed a transplant. I did not have a great response to induction and I'm still not mrd negative. But I'm doing okay 🥰

October 17
A MyMyelomaTeam Member

You can't do that Paul. Knowledge is power. I got on my patient portal. Read all my notes and looked up things I didn't understand. We must advocate for ourselves. We can't if we don't know what is going on.

October 20
A MyMyelomaTeam Member

I think I need a word with my oncologist Donna or do more research I don't have clue about my mm I think I have inherited an ostrich mentality and buried my head in the sand

October 20
A MyMyelomaTeam Member

Good luck with your cart t therapy.Fatigue is horrible when I cannot do anything I feel terribly guilty about it.The treatment plan in the us seems to be vastly different to here,they don't offer regular scans just bloods every 3 months.

October 20

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I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?

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Chattanooga, TN

Hello My Beautiful MM Family, I Had A SCT, In October, I’m Feeling Great, What Are The Chances Of Relapsing After A Sct? Thank You

A MyMyelomaTeam Member asked a question 💭
Prospect Park, PA

My Oncologist Said SCT Isn't Advised At My Age (73). Does Anyone Have Experience? Please Share. Thank You.

A MyMyelomaTeam Member asked a question 💭
Yukon, OK
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