Are SCT Worth I Did Not Have One As I Am Two Years Post Treatment In Remission And A Chap Sat Next To Me In Treatment His SCT 1 Year Clear.
I have aggressive myeloma however I responded well with induction and I had a SCT and have been MRD negative for 3.5 years now and just take Revlimid I do have minor side effects like fatigue and toes are numb . Some types of myeloma respond well without SCT so it’s best to consult your myeloma specialist
Best wishes
Paul, not all patients have to have a transplant. Some patients with standard risk myeloma are getting to mrd negativity with induction. They are able to go straight to maintenance. I needed a transplant. I did not have a great response to induction and I'm still not mrd negative. But I'm doing okay 🥰
You can't do that Paul. Knowledge is power. I got on my patient portal. Read all my notes and looked up things I didn't understand. We must advocate for ourselves. We can't if we don't know what is going on.
I think I need a word with my oncologist Donna or do more research I don't have clue about my mm I think I have inherited an ostrich mentality and buried my head in the sand
Good luck with your cart t therapy.Fatigue is horrible when I cannot do anything I feel terribly guilty about it.The treatment plan in the us seems to be vastly different to here,they don't offer regular scans just bloods every 3 months.
I’m Scheduled To Have A Stem Cell Transplant Next Month, And Wanted To Know If The Process Was Rough Or Easy?
My Oncologist Said SCT Isn't Advised At My Age (73). Does Anyone Have Experience? Please Share. Thank You.
Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?