Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Please Speak Up, What And Who Is Or Has The Longest Remission/ Survival From MM?

A MyMyelomaTeam Member asked a question πŸ’­
Newfoundland, Canada
May 24, 2023
β€’
View reactions
A MyMyelomaTeam Member

Hubby was diagnosed 1/2003 but we are certain he had MM for at least 5 years prior due to the damage that had been done to his left pelvic bone. Tandem STC in 2004 and NO medications other than lisinopril until 2017. 7/2017 another STC transplant followed by Revlimid & Dex for maintenance. 2019-2022 Faspro, Selinexor, Blenrep, Pomalyst/Dex. 1/2023 - VD-PACE; 3/2023 - Teclistamab; 4/2023 - VD-PACE.

But he was on the brink of death between 4/20-5/12 with Sepsis, pneumonia and streptococcus in his bloodstream. Severe pancytopenia - no RBC, WBC or platelets… It was an awful time. Many tests and a BMB. WBC, RBC and platelets started to come back after 2 packed RB transfusions, 4 platelet transfusions and one IVIG infusion. And MANY prayers.

Then on 5/16 - we got the results of the BMB β€” no malignancyβ€” we heard the word REMISSION for the first time since 2004! He was discharged from the hospital 5/16 and is getting stronger daily. Taking potassium, his vitamins, Famvir and metoprolol. Bloodwork every week as his counts are still recovering. WBC is now normal; platelets coming up, RBC coming up.

πŸ™ŒπŸ½πŸ™ŒπŸ½πŸ™πŸ½πŸ™πŸ½πŸ™ŒπŸ½πŸ™ŒπŸ½

May 26, 2023 (edited)
A MyMyelomaTeam Member

Hello! I have been off of treatments since April of 2022. In May of 2022, May 9th, my stem cells were withdrawn and sent to a lab where they changed them into cancer eating cells and made them more fertile. On September 27th I was told I was in complete remission and cancer free!!! Woo-Hoo, Praise GOD!
No treatments since April of 2022. I go for a check up in June to continue the streak and be free, still!
AMEN!!! JESUS our healer!

May 24, 2023
A MyMyelomaTeam Member

My daughter met a woman who told her that she had MM and was cancer free for 20 years. She said that she has been traveling and enjoying life. I pray to be that person and that we all live our lives to the fullest.

May 24, 2023
A MyMyelomaTeam Member

This weekend I went flew home in California to be best man in a wedding. It was great but the strange thing was the Bridesmaid in the wedding and I were talking and she has been battling MM For 16 years with just a few setbacks but quick turnarounds. Small world to a big problem but promising. Hearing 16 years gave me even more hope to long life.

January 24
A MyMyelomaTeam Member

❗❗❗ To recap (and inspire!) ❗❗❗

31 years James Bond (diagnosed 1992)
29 years David Emerson (diagnosed 1994)
25 years NancyEpsy (diagnosed 1998)
25 years HalAnderson (diagnosed 1998)
21 years MarciaHolman (diagnosed 2001 – passed 2022)
20 years JoanEs (diagnosed 2003)
15 years PedroFlores (diagnosed 2008)

May 26, 2023

Related content

View All

I Have Stage 3 MM And Choose Not To Do SCT. What Are My Options?

A MyMyelomaTeam Member asked a question πŸ’­
Martinez, CA

Hello My Beautiful MM Family, I Had A SCT, In October, I’m Feeling Great, What Are The Chances Of Relapsing After A Sct? Thank You

A MyMyelomaTeam Member asked a question πŸ’­
Prospect Park, PA

Remission After Stem Cell Transplant

A MyMyelomaTeam Member asked a question πŸ’­
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in