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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Am In Remission. Everyone I Talk To Is On Maintenance. My Dr Does Not Believe In It. Anyone Else Not Doing Maintenance?

A MyMyelomaTeam Member asked a question 💭
Carlstadt, NJ
September 25
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A MyMyelomaTeam Member

Lots of debates with risks. I've been on Revlimid for 16 years. When I'm sick (flu etc) I go off such that my body can fight the infection. I also take one month a year off to help my body cleanse itself. I once took 2 months off went to Puerto Rico and felt like I was cured( sun food etc) and my numbers went through the roof. Figure the longer you are alive with the disease your body immune system is definitely helping fight the cancer. But, the fact that you have the cancer is why you need to be on the meds. I'm a believer

September 28
A MyMyelomaTeam Member

My husband has been off maintenance since May 2021 and his labs have not changed. He was on Revlimid for one year after treatment, but a health issue required stoping Revlimid, and he is no longer on any maintenance. I'm not saying that's good or bad, as every case is different.

September 26
A MyMyelomaTeam Member

I am just on blood thinners as at end of treatment they kept me on tablets for infections ect.They made me ill lost weight and ended up on a DNR so stopped and improved.I think treatment is brutal.

September 30
A MyMyelomaTeam Member

I think it is a good thing that you are not on maintenance, giving your body a break from all those poisons. As long as blood work is continued to monitor your MM. I am technically on a 1-month break, my Dr. felt I needed a break from the medicine. I will have labs in about 1 month & hopefully I am still stable.

September 25
A MyMyelomaTeam Member

It's great to hear that you're in remission. While maintenance therapy is common for many people with multiple myeloma, not everyone follows the same treatment plan. Here are some key points about maintenance therapy:

- Purpose: Maintenance therapy aims to prolong remission and stop disease progression while minimizing Show Full Answer

It's great to hear that you're in remission. While maintenance therapy is common for many people with multiple myeloma, not everyone follows the same treatment plan. Here are some key points about maintenance therapy:

- Purpose: Maintenance therapy aims to prolong remission and stop disease progression while minimizing toxicity and side effects.
- Common Drug: Lenalidomide (Revlimid) is a standard maintenance drug, known for being well-tolerated.
- Adherence: Sticking to maintenance therapy is vital for the best outcomes, as it helps prevent recurrence.
- Side Effects: Common side effects of lenalidomide include changes in blood counts and a higher risk of blood clots.

If you have concerns or questions about your treatment plan, it's important to discuss them with your oncologist to ensure it aligns with your health goals.

September 25

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I Am 74 And Have Gone Through 4 Rounds Of Velcade, Dexamethasone And Revlimid And Am In Remission. I Am On A 10mg Revlimid Maintentance .

A MyMyelomaTeam Member asked a question 💭
Stephenville, TX
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