Unlike others posting, 15mg. lowered to 10mg. still caused problems ( maintainence), so I requested a break, where I am still. If my numbers climb, I hope to take a replacement for Revlimid. You know what? The intolerance I was experiencing wasn't dangerous and I think there were things that could have alleviated the problems but I just felt that getting off treatment might be more beneficial. This is where I am now.
For better or worse 🙏

Thanks you everyone for the responses looks like there is a pattern here. I will be going from 25 mg to 10 mg daily. I have been lucky not to have any reaction to the Revlimid but as we all know that’s subject to change 🍀🤞. For those not being able to take revlimid I am glad they have alternatives that are working. As awful as this disease is we are lucky to have such amazing meds that keep us alive! Blessings to all thank you!! Keep the faith!

Thank you Bonnielynn, I appreciate you sharing. I have a PEMF pad and that is a big help as it does make the back feel better and keeps me warm at the same time. A break would definitely be nice especially if you feel better. I’m hoping in just a couple weeks that by going on maintenance therapy I will feel better. Keep your fingers crossed for me! Wishing you a great week! ❤️

I started on 25 mg of Revlimid in 2020 when I relapsed 8 months after my SCT. I was also put on Darzalex and dexamethasone. Within 2 months I achieved remission, "precipitously," as my hematologist at Mayo deemed it. I was gradually reduced to 10 mg of Revlimid (21 days on, 7 days off), and went from weekly to monthly treatments woth Darzalex. I am currently taking 12 mg of dexamethasone a week. I also get Neulasta once a month. I had some terrible muscle spasms on higher doses of Revlimid but that has lessened with lower doses. I often go through a whole cycle without major problems. The only other side effect I have is eczema, and it occurs during the winter months. I remain gratefully in remission.

Kathryn,
Anyone who reads your text,"stage one Sept 2018 and remission in April 2019" can only feel HOPE .....that someday maybe they will be like you ...... that things may get better ..... that they can continue with their struggle, knowing it can get better. You are so good for the rest of us.
Marcia