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Update: My Diagnosis Is Smoldering Myeloma Based On The ONC Update Today: 1) BMB 20% 2) Bone Scan NEGATIVE 3) EGFR Normal, 88. Monitoring.

A MyMyelomaTeam Member asked a question 💭
Tallahassee, FL

I was informed today that the bone scan was negative and the eGFR, for my kidneys, was within range or 88, which I knew yesterday. Thus, I was told we are moving into the monitoring phase. The next MONOTORING for blood work is on September 6 and ONC appointment is September 10th, to review bone scan, labs and complete the diagnosis, in-terms of proving me with a complete work up, which I hope to receive from the ONC, so I can then ask for a second opinion and assemble a team of experts to… read more

August 21
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A MyMyelomaTeam Member

Dan, it looks like a pretty good report so long as the SMM can be held at bay! I am impressed that the eGFR is 88 (pretty good kidney health) the artificial sweeteners must have been the problem! My eGFR is 21 or so, infinitely worse than yours. Please protect your kidneys throughout treatment - always ask if each drug or supplement or whatever can impact your kidneys! Best wishes! Martin

August 21
A MyMyelomaTeam Member

Thank you for sharing your update. Here’s a summary based on your diagnosis of Smoldering Multiple Myeloma (SMM):

Diagnosis Details
1. Bone Marrow Biopsy (BMB): 20% plasma cells.
2. Bone Scan: Negative (no bone lesions detected).
3. eGFR (Estimated Glomerular Filtration Rate): Normal at 88, indicating normal kidney Show Full Answer

Thank you for sharing your update. Here’s a summary based on your diagnosis of Smoldering Multiple Myeloma (SMM):

Diagnosis Details:
1. Bone Marrow Biopsy (BMB): 20% plasma cells.
2. Bone Scan: Negative (no bone lesions detected).
3. eGFR (Estimated Glomerular Filtration Rate): Normal at 88, indicating normal kidney function.

Monitoring and Management:
- Regular Monitoring: Since you have SMM, regular follow-up visits and testing are crucial to monitor the condition’s progress. This helps in catching any progression to multiple myeloma early.
- Watchful Waiting: This approach allows you to avoid treatment side effects while keeping a close eye on the condition.
- Potential Treatments: Some people with SMM take bisphosphonates to strengthen bones and protect against bone damage. Drugs like Revlimid (lenalidomide) and low-dose Decadron (dexamethasone) may also be considered to reduce the chances of developing multiple myeloma, especially if you are at high risk.

Risk Factors for Progression:
- High numbers of plasma cells in the bone marrow.
- High levels of M protein.
- M protein made from IgA heavy chain, rather than IgG.
- Bone lesions (though your bone scan is negative).

Support:
- MyMyelomaTeam: A social network for people with multiple myeloma and their loved ones, where you can ask questions, give advice, and share your experiences.

Feel free to reach out if you have more questions or need further information!

August 21
A MyMyelomaTeam Member

Indeed, stay well my friend.

August 25
A MyMyelomaTeam Member

Yes, sir. Health is true wealth indeed. This was one of the topics at our luncheon today with friends from church fellowship.

August 25
A MyMyelomaTeam Member

Hi Miriam, i ordered Dr, Brandy book, would be a blessing to nip this in the bud, we shall see, they say monitor and watch ha, but now is when, like u said, we go on the offensive with the right supplements and guidance by u and others and beating back cancer naturally, thanks for the book reference, stay well, health is the tru wealth.

August 23

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