Hi Dan,
Check out Healthtree as they offer services to Multiple Myeloma patients such as mentoring through a patient coaching program , a financial coaching program, and help locating a local qualified oncologist and Multiple Myeloma Specialists.
The Multiple Myeloma Research Foundation also offers recommendations for oncologists and Multiple Myeloma Specialists. The difference between choosing an oncologist and a MM Specialist is often the geographic barrier for specialists at major cancer clinics and local oncologists. Local oncologists often do not have the expertise and up to date information that a Specialist has particularly for multiple myeloma since they treat all cancers.
Both organizations offer free webinars to patients. I have a Healthtree coach , attend on line free webinars, and have used their Healthtree University courses .
I hope this information helps.

Why haven’t u had a pet or bone scan via X-ray the pet scan is the gold standard I have learned a bone scan w X-ray is like using a rotary dial phone to make a call or driving a Fred flint stone car

Kathryn, I was resign ur message and thinking I know a MM coach aka specialists like u describe, and then I said David Emerson, I found him a month ago and he has been advising me awaiting my diagnostics which I got this week so I’m about to sign up for his course and consult w him about my diagnosis, later this week bec my pet scan was denied by insisrance and my onc refuses to ask for a peer to peer review based on my prior weeks BMB 20% I have been diagnosed w smoldering myeloma, anyway, the bone scan is not detailed as the pet scan, I will ask David Emerson to advise me on what to do, whether I should accept the bone scan or insist on the pet scan…

My coach is simply a long time MM patient; we are all different but he has been through a LOT and doing well after 30 yrs. of living through treatment and also off treatment with nutritional and alternative ..treatments. He is not a practitioner!