Hi Pamela,
Unfortunately many multiple myeloma treatments can cause loss of taste and neuropathy among other issues. I fought loss of taste for a considerable amount of time. I was treated on RVD to RV, to now Revlimid maintenance. The early stages of treatment had the most side effects such as thrush, and loss of taste that are troubling you. I took Acylovir , and medicine for thrush when it occurred. I brushed my tongue lightly and made sure that I did not have a coating on my tongue. Talk with your healthcare team and they can provide you with solutions specific to your case. My oncology team included nurses who were experienced and compassionate so they have all seen this before. Take care and keep in touch.

I forgot to tell him. I have a phone visit with his pharmacist this week. It is on my list of questions.

I'm on a clinical trial and experienced loss of taste and numbness. Almost all of the symptoms have disappeared. Numbness is gone and taste about 60% back. I have been on this clinical trial for 7 months so far starting with weekly treatments - now on monthly treatments.

Pamela, Elotuzamab, is probably the cause of the taste alterations. It is one of the side effects listed. What did your doctor say about the numbness around your mouth? It is worrisome.

I've been on Elo / Pom / Dex for about 2 years. I have had times where my sense of taste is affected, sometimes meaning some favorite foods taste bad for a while. It comes and goes, though, and there doesn't seem to be a pattern to it.