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I’ll Soon Start Darzalex Faspro Injections Following A 1st Relapse.Can Those On These Share Thr Feedback (improvement & Side Effects? Thk U

A MyMyelomaTeam Member asked a question 💭
Mauritius

I hv recently had a 1st relapse after remission of 5 yrs without any maintenance therapy.

June 29
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A MyMyelomaTeam Member

I was on the Revlimid/Velcade/Dexamethaxone (RVD) induction treatment prior to my stem cell transplant (STC) and on the RVD again for maintenance. The Revlimid was very harmful to me, so I was changed to Darzalex infusion. As soon as the Darzalex FasPro injection came out, I was switched to that. I also cannot tolerate the Dexamethasone, so now I am on Darzalex FasPro alone and doing very well. My labs have remained stable and I have only a few side effects that are manageable. I take Cymbalta for neuropathy and get plenty of rest (along with regular exercise). I'm not ever going to be the person I was before MM, but I feel good and I feel like I have a good quality of life. If that ever changes, there are lots of MM treatments out there. I do get IVIg infusions every month to boost my immune system. Ask your doctor about vitamin supplements - most of us rely on a good Vitamin B Complex and Vitamin D3. Hope you find the right combination of treatments that work for you! (((((hugs))))) ~sally

June 30
A MyMyelomaTeam Member

That is excellent news that you were able to go 5 years before relapsing! That is a good sign on your overall survival prognosis. Those that can go five to ten years without relapsing generally remain on God’s Green Earth longer than others.

The Darzalex FasPro is an excellent therapy each month. You should be able to tolerate it well.

Will you also be going on daily Revlimid and monthly Decadron pills?

Best of luck in this course of action.

June 29
A MyMyelomaTeam Member

I have been on several drugs and darzalex was very tolerable with no side effects . But everyone is different

June 29
A MyMyelomaTeam Member

I was also on darzalex with velcade and dexamethasone for my first treatment regimen. I had no unusual complications (normal fatigue, anemia, etc.) until my light chains started going up. Then switched to a new regimen.

June 29
A MyMyelomaTeam Member

Thk u all for Yr replies on my question relative to Darzalex Faspro. They r very encouraging 👍

June 29

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