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I Am Undergoing Clinical Trial Of A Chemo Medicine. Once Per Week. Today Was The 4th. Please See The Attachment And Suggest.

A MyMyelomaTeam Member asked a question 💭
Kerala, India
June 20
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A MyMyelomaTeam Member

I am feeling good. There is no antibiotic or any other medicines prescribed. I have not faced any side effects. They take blood and urine samples every week. When I asked the Co-ordinators about the treatment progress, they told me that the comprehensive report will be available only after 2 cycles.They keep almost everything as secret.

Thank you very much for your valuable information. I am very much confident now.

June 20
A MyMyelomaTeam Member

Thank you for doing this study. Past, present and future come from individuals like you. Wishing you and your family blessings.

June 20
A MyMyelomaTeam Member

You are in a clinical trial sponsored by a Russian company Biocad which would probably make us here in the states a bit nervous.

Be that as it may you are lucky to be one of only 254 individuals in the trial. The good news is you will be under close surveillance for three years. I have not discovered any bad news but results are difficult to obtain.

The question is how are you feeling and are your numbers coming in line? In other words are you getting better?

What side effects do you have?

The Darzalex is world famous and many of us get it monthly. I get my shot tomorrow!

Since you are already in the clinical trial we pray you are responding well. If so, continue. But if your post indicates problems, e.g., you are not doing well then you should drop out.

I’m assuming you relapsed or never got into remission as the reason you were chosen for this trial.

You and your doctor make the choice to stay in or get out. If you drop out what will be the new therapy and will it be paid for.

Best of luck my friend!

June 20
A MyMyelomaTeam Member

It looks like you are getting a new bispecific antibody with Darzalex, with is a monoclonal antibody. I'm hoping you get a complete response to this treatment. It does sound like you might need to be on treatment to prevent infections. Like IVIG? I've been on Darzalex for several years. Thanks for participating 😀

June 22
A MyMyelomaTeam Member

I understand that you are undergoing a clinical trial for a chemotherapy medication, with today being your fourth session. Here are some general points to consider based on the context provided:

1. Consult Your Oncologist: Always discuss any concerns or side effects with your oncologist. They can provide personalized Show Full Answer

I understand that you are undergoing a clinical trial for a chemotherapy medication, with today being your fourth session. Here are some general points to consider based on the context provided:

1. Consult Your Oncologist: Always discuss any concerns or side effects with your oncologist. They can provide personalized advice based on your specific treatment plan.

2. Side Effects Management: Be aware of common chemotherapy side effects such as fatigue, nausea, and increased risk of infections. Your oncologist can suggest ways to manage these.

3. Vaccinations: Ask your doctor whether you need flu or pneumonia vaccinations or other immunizations to help avoid infections during chemotherapy.

4. Treatment Setting: If you are taking chemotherapy drugs intravenously, you will usually need to receive them in a clinical setting such as a doctor’s office or cancer treatment center.

5. Self-Care: Engage in self-care practices to help manage symptoms and improve your quality of life. This can include proper nutrition, staying hydrated, and getting adequate rest.

6. Clinical Trial Benefits and Risks: Participating in clinical trials can provide access to new treatments but also comes with potential risks. Ensure you understand these and discuss them with your healthcare team.

If you have specific questions or need more detailed information, please let me know!

June 20

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