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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Else Here With The Combination Of Multiple Myeloma And Amyloidosis?

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ
April 29
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A MyMyelomaTeam Member

Yes, I have both. I started with amyloidosis and MGUS about 11 yrs ago. In October 2023 I was diagnosed with SMM. I am in treatment with Revlimid and Darzalex Fast Pro for just over a month now.

May 2
A MyMyelomaTeam Member

Hi Tom,
I have seen many posts where people share that they have both. If you don’t get any feedback, check old Q & A posts.
Paula

April 29
A MyMyelomaTeam Member

Yes, it's not uncommon for individuals to have both multiple myeloma and AL amyloidosis. About 15 percent of people with myeloma also develop AL amyloidosis. This combination can complicate treatment and prognosis. If you're dealing with both, it's crucial to work closely with your healthcare team to tailor a treatment plan Show Full Answer

Yes, it's not uncommon for individuals to have both multiple myeloma and AL amyloidosis. About 15 percent of people with myeloma also develop AL amyloidosis. This combination can complicate treatment and prognosis. If you're dealing with both, it's crucial to work closely with your healthcare team to tailor a treatment plan that addresses both conditions effectively. How has your experience been managing these conditions?

April 29

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