Sorry, Sol, I did not start going to Fred Hutch until after I was diagnosed with Multiple Myeloma. I did not know they had that rule? However, at the stage you are in right now, there is not much that can be done other than what they call "watchful waiting." and any good doctor or Oncologist can handle that. You probably don't feel lucky, but from my perspective, you are really lucky to only be at the MGUS stage. (What I would give to be there again!) Be sure to get your blood tested regularly and hold the vision that you will be one of the lucky ones that it never gets beyond MGUS. If your numbers do spike, then I am sure that Fed Hutch will take you. It is really good you are being monitored, so if you do spike, they can start treating you before you have any bone damage. (I still don't have bone damage after 12 years because they caught me so early.) There are a lot of people with MM who are dealing with terrible bone issues because they were not caught early. Hang in there, my friend; it really isn't as bad as it must seem to you right now. There are some great advancements in the pipeline and I firmly believe we are going to see a cure in our lifetime!

I was diagnosed with MGUS , in2015. My Md was really casual about testing, follow-up ,etc.I actually forgot about it! By July2018, I had cervical deteriorated in my C5, cervical area. My left Femur had a large lesion ,that required surgery. 2 surgeries in one month! My Femur broke during surgery. I’m writing this to over stress how important it is to follow-up . My oncologist was amazing at starting the treatments..I saw her ,exclusively ,had SCT in 2019. I developed some issues, not receiving treatment for 9 months due to a Brain infection. I am now seeing Myeloma Specialist and my Oncologist I’m ,pleasantly surprised to be excited with the New treatments and potentials Don’t lose touch with your body. Follow-up as needed. Bone damage is tough!