@A MyMyelomaTeam Member. I am 54 years and was diagnosed when I was 46 years old from NY. All my treatments and medical care are through New York Presbyterian Weill Cornell On W 68th Street.They have a center dedicated to Multiple Myeloma called the Multiple Myeloma Center. Their doctors are specialists and they have research nurses. They have a team that seek clinical trials. I have been through 2 stem cell treatments, 1 T cell transplant. They were not back to back, not in this order. These did not last long for me due to the aggressive form of MM that they said I have. I have done Cart t, been on Revlamid, Pomalyst, Darzalex. There was a period in which they were unable to find a treatment that worked for me. I used to say I am a professional patient. Lol! BUT GOD!
This disease may Not yet be curable but it is healable by God.

I would like to share some tips with you:
* Stay positive
* Build mental strength
* Seek healing Bible verses and read, learn them and incorporate the verses into your prayers.
* Change your language if they do not reflect the healed/version of you. In essence, speak the things that are not as though they are.
* Know that the world was formed with words. What are you creating with your words?
* Know that with God, you have already won the battle in life and in death.
* Self Care is important. This includes:
- cutting off toxic relationships, being around positive spiritual mature set of people that support you and grow you in different aspects of your life.
- Schedule massages.
- Get positive tips from people that have been on this journey.
- Learn and reframe this scary journey as an adventurous healed journey even though you will NOT feel this way all the time. It is NOT the feeling that counts it us the mental fortitude that will get you through.

I pray these tips are helpful. 😍

Mentioned Users

A MyMyelo...

Hi Karen, I was diagnosed at 57. I'm 64 now. Both my doctors strongly recommend exercise. I do the elliptical 40 minutes each day. I walk daily also. I do try to eat well. Lots of fruits and vegetables. I stopped eating red meat. I still eat chicken and fish. I wasn't able to exercise much the first 18 months or so after diagnosis. I did walk every day. 💖

I was told that I should never be as sick as I was at the beginning. That is if I keep up with my recommended treatments, labs and bone marrow biopsies. Hoping to catch it early when I relapse. I also try to eat well and exercise. We just have to stay healthy for the next treatment. Some people do have very aggressive disease that can go wrong quickly. Most patient's disease is some what predictable. Getting a Specialist and following their recommendations is important 🥰

Hi Karen.. Yes, two or three times. Lucky for all of us, new drug discoveries and advancements in all areas of treatment have resulted in stunningly positive results. I am not spiritual, though I do maintain contact with my guardian angel. Healed has some beautiful advice . Best to you.

Thanks Donna for your input. How long have you had MM and what is your age? I used to be a big exercise person. I am active but I can't exercise like I used to. My hips, neck, back, etc hurt alot and I have to be so careful or I will pay dearly. I started back walking in the summer and did well other than my hips hurt and I can't move well afterwards however I keep going. Sometimes I don't know if I'm doing more harm but I do it for my mental state. As far as eating properly I don't get near the vegetables I need. I struggle having an appetite and don't stay motivated to cook for one person. I sound negative but unintentional. Everyone has their circumstances. I try to stay positive most of the time. Having good friends help.