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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Having SCT Next Week. Going To Be Admitted Due To Having Dialysis 3x A Week. Any Suggestions On What To Expect?

A MyMyelomaTeam Member asked a question 💭
Jacksonville, FL
January 29
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A MyMyelomaTeam Member

When the Melphalan kicks in (day 5, 6, 7):
Nausea
Vomiting
Lightheaded
Dizzy
Fatigue
Diarrhea
Weakness
Taste sucks
Hair loss

Don’t expect outside food to taste good. It’s not just the hospital food. You’ll know it’s bad when vanilla Ensure tastes good!

Your WBC will go to zero. That means you’re in the middle of the wormhole. Enjoy the staycation!

January 30
A MyMyelomaTeam Member

Here are some things to expect and consider for your upcoming stem cell transplant (SCT) and dialysis:

Stem Cell Transplant (SCT) Side Effects
- Short-term Side Effects:
- Nausea or vomiting
- Diarrhea
- Tiredness
- Mouth sores
- Bleeding problems
- Anemia (leading to fatigue, dizziness, shortness of breath, Show Full Answer

Here are some things to expect and consider for your upcoming stem cell transplant (SCT) and dialysis:

Stem Cell Transplant (SCT) Side Effects:
- Short-term Side Effects:
- Nausea or vomiting
- Diarrhea
- Tiredness
- Mouth sores
- Bleeding problems
- Anemia (leading to fatigue, dizziness, shortness of breath, and pale skin)
- Infections

- Long-term Side Effects:
- Cataracts (clouded vision)
- Sexual side effects
- Early menopause
- Infertility
- Increased chances of developing another type of cancer
- Graft-versus-host disease (for allogeneic transplants)

Dialysis Considerations:
- Hemodialysis:
- Typically done 2-3 times a week at a dialysis center, each session lasting 3-5 hours.
- Possible side effects include cramps, nausea, headaches, or dizziness.
- Dietary changes may be necessary, such as eating more protein and limiting certain nutrients.
- Risks include infection or clotting of the access device.

- Peritoneal Dialysis:
- Can be done at home, either during the day (CAPD) or overnight (CCPD/APD).
- Requires minor surgery to place a tube in the abdomen.
- Risks include peritonitis, a serious infection of the peritoneum.

General Tips:
- Communication: Keep your healthcare team informed about any side effects or health problems you experience.
- Diet: Follow dietary recommendations to manage side effects and maintain nutrition.
- Travel: Plan dialysis appointments in advance if you need to travel.
- Infection Prevention: Ensure good hygiene and care for your access device to prevent infections.

Good luck with your treatment, and don't hesitate to reach out to your healthcare team with any concerns!

July 27
A MyMyelomaTeam Member

I will say a prayer

January 31

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