thanks for this question Jeff. I started 10 mg. daily of Revlimid two months after my SCT. I was wondering if I could get off while I enjoy a vacation I have planned for December. So it is good to know you can go off it periodically. Currently I have fatigue, body aches, numb hands and feet and worst thing is my taste buds are still funky. so my appetite is low. I haven't heard anyone talk about taste buds, but I am hoping it is still from the intense chemo back in Feb. and not the Revlimid. they say tastebuds take the longest to recover after SCT. anyway, sorry you are feeling so bad after getting off. I hope it passes soon! I really appreciate the question and all the comments as well. I learned a lot.

@A MyMyelomaTeam Member Hi Anne, good question. If you have been healthy to this point and your myeloma was caught relatively early it would definitely be worth going through treatment. It’s not pleasant you feel sick once in a while and are very tired but if you are prepared to rest then you will have a lot of good days. It’s hard to say what is best for you. But if the meds work you can have many years of enjoyment left! Wishing you the best!!

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A MyMyelo...

I haven’t had a break from Revlimid since I started taking it except when I had a stem cell transplant. I was off for 1 cycle only. No real size affects I could tell because I was recovering from the stem cell transplant which was hard.

Angie, I read this when I searched for "who should not take liposomal curcumin?"... "People who are on blood-thinning medication, such as warfarin (Coumadin), clopidogrel (Plavix), and aspirin are typically advised against taking a curcumin or turmeric supplement, because the supplements can enhance the drugs' blood-thinning effects, perhaps to dangerous levels." have you heard this? I was prescribed one 81 mg aspirin along with Revlimid because it can cause blood clots so I am concerned about this warning. leslie

Jeff,
I had gotten off revlamide 5 mg last week to get rid of shingles and got back on acylovir 400 mg one pill per day.

I noticed back pain increased so got back on revlamide 5 mg feel better on pain issue. Also took liposomal curcumin one huge tablespoon.

I noticed a side effect of dapsone is insomnia and increased anemia so plan to get off dapsone again.
I was having problems sleeping plus very cold hands feet weak and pale. I took geritol for more iron b-12 drops and multiple vitamin with iron.

I keep having sinus issues took Claritin helps with pain also plus 2 Quercetin, 2 vitamin c 1000 mg, Flonase nose drops, drank green tea, acacia berry tea saffron tea mixed with honey seems to help. Would love a delicious beef vegetable soup about now!

See Mark Parker’s video this morning excellent on dizziness can’t wait to try it too!!!