IGG Lambda Patients Taking Pomalyst
Hi I was wondering how many milligrams are you taking of Pomalyst and how long did it take to reach a complete response? So far it’s working but very slowly.
Thanks Joan, my Dr also says he doesn’t want to increase my Pomalyst because it’s keeping the myeloma at bay and I’m tolerating it fairly well so as long a it keeps going in the right direction I’m ok with it!
I have been in remission since September 2022.
I've been on Pomalyst 2 mg with Darzalex since before my transplant in 2017. I'm in a very good partial response, still. I'm IgG Lambda as well. So, I'm very thankful my numbers are going down. Hopefully, slow to come down means slow to come up? My labs are good except my immunofixation still shows a faint band in the Lambda region and I'm MRD positive at 74 clonal cells per million. Considering I started out at over 95% clonal cells in my bone marrow, I'm doing well 😉💕
I took Pomalyst, but for only two weeks as it caused me to have a rash, breathing problems and very high ALT and AST numbers on my blood work. It was stopped right away because of the ALT and AST numbers which have to do with liver functions.
IgA Myeloma
Anyone Having Any Luck Getting Their Ig Levels To Go From Low (immune Compromised), Back To Normal ?
I’ve Yet Another Odd Question. Can You Have Say IgA Kappa Light Chain And IgG Lambda At The Same Time?