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Anyone Having Any Luck Getting Their Ig Levels To Go From Low (immune Compromised), Back To Normal ?

A MyMyelomaTeam Member asked a question 💭

At 6 weeks of induction my IgG, and IgM (immune levels) were still normal and my very high IgA had returned to normal. As they continued to with induction, for 12 weeks total, my Ig levels all went to very low. Asking about it, I was told the MM Meds were hard at work, attacking what was left of my immune system.

Now that I'm in Complete Remission and no longer taking MM Meds, I'm hopeful that my immune system might recover to normal. My Doc doesn't expect that to be the case. I asked about… read more

August 24, 2022
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A MyMyelomaTeam Member

Hi Larry has your Dr ever mentioned ivig? When I was first diagnosed I was on monthly ivig infusion. They continued even after my sct until my igg iga igm were all within normal which took about 2 years after the sct. I will tell you, I had sinus infections and colds all the time and when I received the ivig that really helped prevent illnesses

October 24, 2023
A MyMyelomaTeam Member

Thanks for this information

August 26, 2022
A MyMyelomaTeam Member

Hi, mine in Aug was
IgG - 729 - L
Iga - 103 - good
Igm - 30 - L
In June was
IgG - 702 - L
Iga - 90 - good
Igm - 26 - L
Jan was
IgG - 754 - L
Iga - 41 - L
Igm - 35 - L
I just went on Monday the 22 and my Doctor said I am doing good everything is going like it should. That I am still in remission. Larry I hope this helps. Keep me informed how your doing. I keep you in my prayers.

August 24, 2022
A MyMyelomaTeam Member

I got ivig for my low levels

August 24, 2022
A MyMyelomaTeam Member

Hi I had IgG levels that ranged round 400. I take weekly infusions of IgG. Most hetmatologist don't deal with low IgG. The immunologist are the experts on immunology. In 2015 Mayo recommended IgG replacement therapy. I than went to an Imunologist. My Hetmetologist at Cancer Treatment Centers of America were opposed to replacement therapy. After a few years I conveinced the Director of SCT to prescribe my IgG replacement
therapy. I am now a patient at Penn medicine and my Hemetologist had no problem writing the prescription. My Doctor said he tried to get other patients approved with no success and he asked how I got approval. As of July 2021 medicare will pay if the IgG is coded as CVID (Common Variable Immune Deficiency). From January to July of this year my issueance was billed $167,000. for my Hizentra Infusions. I have good medicare insurance and a fantastic specialty pharmacy. I chose Hizentra because it has little affect on my IgA (
my IgA is 1560) which isn't to bad for a person not taking treatment for MM. I infusion myself in the comfort of my home weekly andy level my IgG runs about 850 and IVIG they gave me back a better quality of life. Take some time to go onto the IDF.ORG website and the have great information. IDF (Immune Deficiency Foundation).

August 24, 2022 (edited)

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