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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

B-12 Update

A MyMyelomaTeam Member asked a question 💭
Phoenix, AZ

Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸

July 1, 2023 (edited)
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A MyMyelomaTeam Member

I’ve been talking B12 for quite awhile and find sometimes I have energy and sometimes I don’t. I have one big burst of energy in the morning and then want to take a nap in the afternoon because I’m exhausted. I walk and golf.

July 4, 2023
A MyMyelomaTeam Member

B12 gives most people more energy. I use the liquid type . with me they test for low b12

July 2, 2023
A MyMyelomaTeam Member

Jeff, myeloma is a cancer of the plasma cells not the red blood cells. Myeloma crowds out our red cells. That's why we get anemic🥰💕

July 2, 2023
A MyMyelomaTeam Member

Hi Jeff. Happy 4th. Glad your B12 experience has been positive. I am taking mine on recommendation by my family doctor NOT my Oncologists. Not sure if it has made any difference.
On a different subject, I have had very annoying episodes of an itchy scalp the last few days which I assume is due to the cancer meds. Revlimid, Dex and Kiprolis. Have not been able to discuss with my doctor. Has anyone else had similar experiences with Neutropenia affecting the scalp. I am playing "google doctor" as I have no known allergies or scalp issues like dandruff etc.
Happy 4th
Rudi

July 1, 2023
A MyMyelomaTeam Member

Hi Jeff, thanks for your post on B-12…keep us posted! I also started a methyl (easier to absorb) B complex that includes 800 mcg of b12. I started about a month ago and feel more energy and my neuropathy has gone. However, it could be other factors ( i have traveled to the coast and maybe the lower elevation helped?)
I will keep taking it!

July 2, 2023

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