Phyllis,
I’ve decided not to worry about it. The more I look into SMM, the more I see suffering and not much healing. I’m going to try a Mediterranean and Keto diet and a few other supplements. Have you ever heard of “Emma”?
Paula

Paula, Interesting! I think I read that one of the meds can cause osteonecrosis of the jaw. I talked to my brother again yesterday (this makes 2x in a year) and he has decided not to worry, that because of my "special circumstances" (smm), I'm overreacting and he's carefully ignoring a year's research I've been doing and thinks that consulting a specialist and/or getting a bone scan is overkill. He thinks he'll talk more to the Promise Study people. Of course, my sister participated too and she says their paperwork says just the opposite of what he's saying.

Phyllis

Phyllis3,
They think the risk is low but they say that about osteonecrosis too. They are so many on this site with both.
Paula 🌹

As young as you look, I didn't think they could be. And the way research is moving along, it may never be an issue for them. A few hours ago, I also found an article on this site on Hereditary.....something or other related to MM>

Phyllis,
I’m a little relieved my kids aren’t old enough for the study. I’ll check out the article now.
Paula 🌹