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Do You Feel You Are An Effective Advocate For Yourself?

A MyMyelomaTeam Member asked a question 💭
Galena, MD
January 28, 2023
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A MyMyelomaTeam Member

Yes! my myeloma specialist kept putting that I was IgG Kappa myeloma. I am IgG Lambda. It's on all my bone marrow biopsy reports🤔

February 1, 2023
A MyMyelomaTeam Member

Yes, you must have a good understanding of what your actual diagnosis is !

February 1, 2023
A MyMyelomaTeam Member

I try to be my own advocate but I still don’t understand my FISH results. I’ve asked and they can’t simplify it enough where I can understand. The results say I’m high risk, all my research backs that up, but my Specialist says no. I’m seeing him In March, and won’t leave until I understand.

February 1, 2023
A MyMyelomaTeam Member

I ask lots of questions and we also watch a lot of webinars. I feel very comfortable with our MM team, it is the dentists, ER staff etc that worry me more. Some no very little about MM

January 28, 2023
A MyMyelomaTeam Member

I try to be. I do watch a lot of Webinars so I can stay informed. I do try to do most of what my specialist recommends, but I have the last say💕

January 28, 2023

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